ArticleIntensive care medicine2011
A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units.
Article in Intensive care medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Psychological Outcomes in Fathers of Critically Ill Children in the Pediatric Intensive Care Unit: A Systematic Review.Journal of clinical psychology in medical settings · 2022Pooled it
- Protocolized versus non-protocolized weaning for reducing the duration of invasive mechanical ventilation in critically ill paediatric patients.The Cochrane database of systematic reviews · 2013Pooled it
- A Closer Look at Parental Narratives: A Qualitative Analysis of Parental Entries in Neonatal Research Diaries of Preterm Infants Participating in the REPORT-BPD Feasibility Study.Children (Basel, Switzerland) · 2025Article
- Evaluation of Satisfaction With Care in Paediatric Intensive Care Units: Swedish Parents' Perspective.Nursing in critical care · 2025Article
- Family member experience with restricted family presence in Canadian PICUs: an interpretive descriptive study.European journal of pediatrics · 2024Article
- Physical, Cognitive, Emotional, and Social Health Outcomes of Parents in the First Six Months after Childhood Critical Illness: A Prospective Single Centre Study.Children (Basel, Switzerland) · 2024Article
- Value of Including the Children's Experience for Improving Their Rights During Hospitalization: Protocol for the VoiCEs Project.JMIR research protocols · 2023Article
- A Study of Parental Stressors, Financial Issues as Stress Factor, and the Coping Strategies in the PICU.Indian journal of pediatrics · 2022Article
- Parents' Challenges beyond the Pediatric Intensive Care Unit: Fraying at the Seams while Balancing between Two Worlds, Home and Hospital.Children (Basel, Switzerland) · 2022Article
- Parent post-traumatic growth after a child's critical illness.Frontiers in pediatrics · 2022Article
- Stressors and support system among parents of neonates hospitalised with systemic infections: qualitative study in South India.Archives of disease in childhood · 2021Article
- "The challenge of managing insecurities": Parents' experiences with the care for their child with congenital diaphragmatic hernia.Journal for specialists in pediatric nursing : JSPN · 2019Article
- Parent perceptions of the impact of the Paediatric Intensive Care environment on delivery of family-centred care.Intensive & critical care nursing · 2019Article
- Article
- Repeated Critical Illness and Unplanned Readmissions Within 1 Year to PICUs.Critical care medicine · 2017Article
- Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2017Article
- Quality of care in the intensive care unit from the perspective of patient's relatives: development and psychometric evaluation of the consumer quality index 'R-ICU'.BMC health services research · 2017Article
- Transforming PICU Culture to Facilitate Early Rehabilitation.Journal of pediatric intensive care · 2015Article
- Care and caring in the intensive care unit: Family members' distress and perceptions about staff skills, communication, and emotional support.Journal of critical care · 2015Article
- Continuity of care in children with special healthcare needs: a qualitative study of family's perspectives.Italian journal of pediatrics · 2015Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
methodQualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
resultsParents were interviewed within 1 month after their child's discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
conclusionsThe findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.
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