Evidence map›Paper›PMID 21041539›Full record

ArticleMedical decision making : an international journal of the Society for Medical Decision Making

Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes.

Lori L DuBenske, David H Gustafson, Bret R Shaw, James F Cleary

Registry-linked trialAbstract read
In one paragraph

Article in Medical decision making : an international journal of the Society for Medical Decision Making. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT00214162 (Web-based Support for Informal Caregivers in Cancer), which is not on this map. Cited by 58 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
58citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT00214162 nacompletednot on this map

Web-based Support for Informal Caregivers in Cancer

TypeinterventionalSponsorUniversity of Wisconsin, MadisonRan2004 to 2008Enrolled235ConditionsBreast Cancer, Prostate CancerArmsComprehensive Health Enhancement Support System, computer with internet
3 · Its place in the literature

Who cites it

58 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Pooled it
  2. Health literacy in cancer caregivers: a systematic review.Journal of cancer survivorship : research and practice · 2021
    Pooled it
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  7. Improving Breast Cancer Surgical Treatment Decision Making: The iCanDecide Randomized Clinical Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2018
    Trial
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  9. CHESS improves cancer caregivers' burden and mood: results of an eHealth RCT.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2014
    Trial
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

4 authors.

Lori L DuBenskeSchool of Medicine and Public Health, Department of Psychiatry, University of Wisconsin-Madison, USA. dubenske@wisc.edu
David H Gustafson
Bret R Shaw
James F Cleary

Funding

Using Technology to Enhance Cancer Communication and Improve Clinical OutcomesP50CA095817 · NCI · UNIVERSITY OF WISCONSIN-MADISON · PI BURNSIDE, ELIZABETH S · 2003 to 2012
$19.3M
Web-Based Support for Informal Caregivers in CancerR01NR008260 · NINR · UNIVERSITY OF WISCONSIN-MADISON · PI GUSTAFSON, DAVID H · 2002 to 2006
$2.3M
NCI NIH HHS 1 P50 CA095817-01A1NCI NIH HHS P50 CA095817NINR NIH HHS R01 NR008260
6 · The paper itself

Abstract

Over the cancer disease trajectory, from diagnosis and treatment to remission or end of life, patients and their families face difficult decisions. The provision of information and support when most relevant can optimize cancer decision making and coping. An interactive health communication system (IHCS) offers the potential to bridge the communication gaps that occur among patients, family, and clinicians and to empower each to actively engage in cancer care and shared decision making. This is a report of the authors' experience (with a discussion of relevant literature) in developing and testing a Web-based IHCS-the Comprehensive Health Enhancement Support System (CHESS)-for patients with advanced lung cancer and their family caregivers. CHESS provides information, communication, and coaching resources as well as a symptom tracking system that reports health status to the clinical team. Development of an IHCS includes a needs assessment of the target audience and applied theory informed by continued stakeholder involvement in early testing. Critical issues of IHCS implementation include 1) need for interventions that accommodate a variety of format preferences and technology comfort ranges; 2) IHCS user training, 3) clinician investment in IHCS promotion, and 4) IHCS integration with existing medical systems. In creating such comprehensive systems, development strategies need to be grounded in population needs with appropriate use of technology that serves the target users, including the patient/family, clinical team, and health care organization. Implementation strategies should address timing, personnel, and environmental factors to facilitate continued use and benefit from IHCS.

Indexed as

Decision MakingDecision Support TechniquesPhysician-Patient RelationsAlgorithmsCommunicationHumansInternetNeoplasmsOutcome Assessment, Health CarePatient Care TeamPatient Education as TopicQuality of Health CareSocial SupportUnited States

Identifiers

PMID21041539
PMCPMC3085247

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.