ArticleHealth expectations : an international journal of public participation in health care and health policy2011
Service user involvement in cancer care: the impact on service users.
Article in Health expectations : an international journal of public participation in health care and health policy, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Involvement: lessons from experience - a personal journey.Research involvement and engagement · 2026Article
- Experiences of current practice, priorities and strategies for enabling meaningful consumer and community involvement collaborations in health and medical research in Queensland, Australia.Research involvement and engagement · 2026Article
- Improving equity and wellness in cancer care with people of Latin American and African Descent: a study protocol.Frontiers in oncology · 2025Article
- Qualitative assessment of expectations on the content, form and way of delivery of a prehabilitation programme in patients with lung resection surgery - A Swiss tertiary centre experience.SAGE open medicine · 2024Article
- Increasing access to palliative care for patients with advanced cancer of African and Latin American descent: a patient-oriented community-based study protocol.BMC palliative care · 2023Article
- Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations.Research involvement and engagement · 2023Article
- The impacts of partnering with cancer patients in palliative care research: a systematic review and meta-synthesis.Palliative care and social practice · 2022Review
- Winners and Losers in Palliative Care Service Delivery: Time for a Public Health Approach to Palliative and End of Life Care.Healthcare (Basel, Switzerland) · 2021Article
- Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.Research involvement and engagement · 2021Review
- Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.Palliative medicine · 2021Article
- Patient and public involvement facilitators: Could they be the key to the NHS quality improvement agenda?Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Partnering with frail or seriously ill patients in research: a systematic review.Research involvement and engagement · 2020Review
- The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?Research involvement and engagement · 2020Article
- What makes it work? Exploring experiences of patient research partners and researchers involved in a long-term co-creative research collaboration.Research involvement and engagement · 2020Article
- Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.Palliative medicine · 2019Review
- Re-orienting health systems through a commissioning approach: finding solutions for improved consumer engagement.Health research policy and systems · 2019Review
- 'Adding another spinning plate to an already busy lifeBMJ open · 2018Article
- What constitutes meaningful engagement for patients and families as partners on research teams?Journal of health services research & policy · 2018Article
- A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory.Health expectations : an international journal of public participation in health care and health policy · 2016Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundService user involvement is embedded in the United Kingdom's National Health Service, but knowledge about the impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap.
objectiveTo explore the personal impact of involvement on the lives of service users affected by cancer.
designWe conducted eight focus groups with user groups supplemented by nine face-to-face interviews with involved individuals active at a local, regional and national level. Thematic analysis was conducted both independently and collectively. SETTING AND
participantsSixty-four participants, engaged in involvement activities in cancer services, palliative care and research, were recruited across Great Britain.
resultsWe identified three main themes: (i) 'Expectations and motivations for involvement'- the desire to improve services and the need for user groups to have a clear purpose, (ii) 'Positive aspects of involvement'- support provided by user groups and assistance to live well with cancer and (iii) 'Challenging aspects of involvement'- insensitivities and undervaluing of involvement by staff.
conclusionsThis study identified that involvement has the capacity to produce varied and significant personal impacts for involved people. Involvement can be planned and implemented in ways that increase these impacts and that mediates challenges for those involved. Key aspects to increase positive impact for service users include the value service providers attach to involvement activities, the centrality with which involvement is embedded in providers' activities, and the capacity of involvement to influence policy, planning, service delivery, research and/or practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.