ArticleQualitative health research2011
Preserving the self: the process of decision making about hereditary breast cancer and ovarian cancer risk reduction.
Article in Qualitative health research, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed.
- The use of heuristics in genetic testing decision-making: A qualitative interview study.PloS one · 2021Trial
- Understanding risk perception and risk-reducing decision-making for surgery among individuals with a genetic predisposition to epithelial ovarian cancer.Journal of genetic counseling · 2026Article
- Screening, Risk Reduction Strategies, and Clinical Management of Unaffected Carriers ofWorld journal of oncology · 2026Review
- Acceptability of the ePOWER intervention: Managing previvors' cancer-related uncertainty and supporting decision making.PEC innovation · 2025Article
- Psychological factors and the uptake of preventative measures in BRCA1/2 pathogenic variant carriers: results of a prospective cohort study.Hereditary cancer in clinical practice · 2022Article
- Prophylactic Surgery in the BRCA+ Patient: Do Women Develop Breast Cancer While Waiting?Current oncology (Toronto, Ont.) · 2021Article
- How the "control-fate continuum" helps explain the genetic testing decision-making process: a grounded theory study.European journal of human genetics : EJHG · 2020Article
- Illustrating Cancer Risk: Patient Risk Communication Preferences and Interest regarding a Novel BRCA1/2 Genetic Risk Modifier Test.Public health genomics · 2020Article
- Approaches to decision-making among late-stage melanoma patients: a multifactorial investigation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers.Journal of genetic counseling · 2018Article
- Distinctive psychological and social experiences of women choosing prophylactic oophorectomy for cancer prevention.Health care for women international · 2018Article
- Identity, community and care in online accounts of hereditary colorectal cancer syndrome.New genetics and society · 2018Article
- "It was an Emotional Baby": Previvors' Family Planning Decision-Making Styles about Hereditary Breast and Ovarian Cancer Risk.Journal of genetic counseling · 2017Article
- How do women at increased breast cancer risk perceive and decide between risks of cancer and risk-reducing treatments? A synthesis of qualitative research.Psycho-oncology · 2017Review
- Decision making for breast cancer prevention among women at elevated risk.Breast cancer research : BCR · 2017Review
- Breast cancer in Mongolia: an increasingly important health policy issue.Breast cancer (Dove Medical Press) · 2017Review
- Experience of Norwegian Female BRCA1 and BRCA2 Mutation-Carrying Participants in Educational Support Groups: a Qualitative Study.Journal of genetic counseling · 2016Article
- Prophylactic salpingo-oophorectomy in BRCA1 mutation carriers and postoperative incidence of peritoneal and breast cancers.Journal of ovarian research · 2016Article
- Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer.Journal of genetic counseling · 2015Article
- A pilot study of BRCA mutation carriers' knowledge about the clinical impact of prophylactic-oophorectomy and views on fertility consultation: a single-center pilot study.Journal of genetic counseling · 2015Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Women who carry BRCA1 or BRCA2 (BRCA1/2) gene mutations have up to an 88% lifetime risk of breast cancer and up to a 65% lifetime risk of ovarian cancer. Strategies to address these risks include cancer screening and risk-reducing surgery (i.e., mastectomy and salpingo-oophorectomy). We conducted a grounded theory study with 22 BRCA1/2 mutation-carrier women to understand how women make decisions about these risk-reducing strategies. Preserving the self was the overarching decision-making process evident in the participants' descriptions. This process was shaped by contextual conditions including the characteristics of health services, the nature of hereditary breast and ovarian cancer risk-reduction decisions, gendered roles, and the women's perceived proximity to cancer. The women engaged in five decision-making styles, and these were characterized by the use of specific decision-making approaches. These findings provide theoretical insights that could inform the provision of decisional support to BRCA1/2 carriers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.