SynthesisThe American journal of managed care2010
Preferred roles in treatment decision making among patients with cancer: a pooled analysis of studies using the Control Preferences Scale.
Synthesis in The American journal of managed care, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03350854 (An Intervention to Improve Decision Role Concordance Amongst Newly Diagnosed Breast Cancer Patients), which is not on this map. Cited by 113 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
An Intervention to Improve Decision Role Concordance Amongst Newly Diagnosed Breast Cancer Patients
Who cites it
113 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Patient participation in medication reviews is desirable but not evidence-based: a systematic literature review.British journal of clinical pharmacology · 2014Pooled it
- A randomized controlled trial of shared decision-making treatment planning process to enhance shared decision-making in patients with MBC.Breast cancer research and treatment · 2024Trial
- Trial
- The Effect of Providing Audiovisual Surgical Information on Decisional Conflict in Patients Undergoing Plate Fixation for Distal Radius Fractures.Clinics in orthopedic surgery · 2021Trial
- Cross-cultural validation of the patient-practitioner orientation scale among primary care professionals in Spain.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- Shared Decision Making for Syncope in the Emergency Department: A Randomized Controlled Feasibility Trial.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2020Trial
- Do we really allow patient decision-making in rotator cuff surgery? A prospective randomized study.Journal of orthopaedic surgery and research · 2019Trial
- Engaging Diverse English- and Spanish-Speaking Older Adults in Advance Care Planning: The PREPARE Randomized Clinical Trial.JAMA internal medicine · 2018Trial
- Individualized patient decision-aid for immunosuppressive drugs in women with lupus nephritis: study protocol of a randomized, controlled trial.BMC musculoskeletal disorders · 2017Trial
- Trial
- Integrating palliative care into self-management of breast cancer: Protocol for a pilot randomized controlled trial.Contemporary clinical trials · 2016Trial
- Trial
- Breast cancer treatment decision-making: are we asking too much of patients?Journal of general internal medicine · 2013Trial
- Heterogeneity in decision-making engagement among total knee arthroplasty patients in China: a cross-sectional study.BMJ open · 2026Article
- Decisional Conflict in Palliative Head and Neck Cancer Patients.Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery · 2026Article
- Ovarian function suppression decision-making and uptake in premenopausal women with breast cancer: a mixed methods analysis.Breast cancer research and treatment · 2026Article
- Surrogate decision-making for people with disorders of consciousness: considering the control-preferences of informal caregivers before implementing multimodal testing.BMC medical ethics · 2026Article
- Decisional preferences and distress among kidney transplant recipients with impaired graft function.Transplant international : official journal of the European Society for Organ Transplantation · 2026Article
- A scoping review: Understanding brain tumor patients' decisional needs and preferences.Neuro-oncology practice · 2025Review
53 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
objectivesTo collect normative data, assess differences between demographic groups, and indirectly compare US and Canadian medical systems relative to patient expectations of involvement in cancer treatment decision making. STUDY
designMeta-analysis.
methodsIndividual patient data were compiled across 6 clinical studies among 3491 patients with cancer who completed the 2-item Control Preferences Scale indicating the roles they preferred versus actually experienced in treatment decision making.
resultsThe roles in treatment decision making that patients preferred were 26% active, 49% collaborative, and 25% passive. The roles that patients reported actually experiencing were 30% active, 34% collaborative, and 36% passive. Roughly 61% of patients reported having their preferred role; only 6% experienced extreme discordance between their preferred versus actual roles. More men than women (66% vs 60%, P = .001) and more US patients than Canadian patients (84% vs 54%, P <.001) reported concordance between their preferred versus actual roles. More Canadian patients than US patients preferred and actually experienced (42% vs 18%, P <.001) passive roles. More women than men reported taking a passive role (40% vs 24%, P <.001). Older patients preferred and were more likely than younger patients to assume a passive role.
conclusionsRoughly half of the studied patients with cancer indicated that they preferred to have a collaborative relationship with physicians. Although most patients had the decision-making role they preferred, about 40% experienced discordance. This highlights the need for incorporation of individualized patient communication styles into treatment plans.
Indexed as
Identifiers
20873956PMC3020073What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.