Evidence map›Paper›PMID 20869642›Full record

ReviewHeart failure clinics2010

The pediatric cardiomyopathy registry and heart failure: key results from the first 15 years.

James D Wilkinson, David C Landy, Steven D Colan, Jeffrey A Towbin, Lynn A Sleeper, E John Orav, Gerald F Cox, Charles E Canter, Daphne T Hsu, Steven A Webber and 1 more

Registry-linked trialAbstract readReview
In one paragraph

Review in Heart failure clinics, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05961176 (Exploratory Study on Bio-Signal Telemonitoring Using Electronic Textiles in a Pediatric Acute and Critical Care Setting), which is not on this map. Cited by 79 papers.

0numbers the graph read from it
0cells of the map it votes in
79citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05961176 unknown statusnot on this mapstarted 2024, after this paper: background citation

Exploratory Study on Bio-Signal Telemonitoring Using Electronic Textiles in a Pediatric Acute and Critical Care Setting

TypeobservationalSponsorThe Hospital for Sick ChildrenRan2024 to 2026Enrolled100ConditionsHeart FailureArmsSkiin pediatric band and Skiin biometric pod
3 · Its place in the literature

Who cites it

79 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Genomics of pediatric cardiomyopathy.Pediatric research · 2025
    Review
  9. Review
  10. Article
  11. Article
  12. Observational
  13. Review
  14. The outcome of genetic and non-genetic pediatric cardiomyopathies.The Egyptian heart journal : (EHJ) : official bulletin of the Egyptian Society of Cardiology · 2024
    Article
  15. Article
  16. Review
  17. Review
  18. Review
  19. Review
  20. Article

19 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

James D WilkinsonDepartment of Pediatrics D820, Leonard M Miller School of Medicine, University of Miami, PO Box 016820, Miami, FL 33101, USA.
David C Landy
Steven D Colan
Jeffrey A Towbin
Lynn A Sleeper
E John Orav
Gerald F Cox
Charles E Canter
Daphne T Hsu
Steven A Webber
Steven E Lipshultz

Funding

PEDIATRIC CARDIOMYOPATHY REGISTRYR01HL053392 · NHLBI · UNIVERSITY OF ROCHESTER · PI LIPSHULTZ, STEVEN EDWARD · 1995 to 2009
$8.3M
NHLBI NIH HHS HL53392NHLBI NIH HHS R01 HL053392
6 · The paper itself

Abstract

Cardiomyopathy is a serious disorder of the heart muscle and, although rare, is a common cause of heart failure in children and the most common cause for heart transplantation in children older than 1 year of age. Funded by the National Heart Lung and Blood Institute since 1994, the Pediatric Cardiomyopathy Registry (PCMR) has followed more than 3500 North American children with cardiomyopathy. Early analyses determined estimates for the incidence of pediatric cardiomyopathy (1.13 cases per 100,000 children per year), risk factors for cardiomyopathy (age <1 year, male sex, black race, and living in New England as opposed to the central southwestern states), the prevalence of heart failure at diagnosis (6%-84% depending on cause), and 10-year survival (29%-94% depending on cause). More recent analyses explored cause-specific functional status, survival and transplant outcomes, and risk factors in greater detail. For many topics these analyses are based on the largest and best-documented samples of children with disease such as the muscular dystrophies, mitochondrial disorders, and Noonan syndrome. Data from the PCMR continue to provide valuable information that guides clinical management and the use of life-saving therapies, such as cardiac transplantation and approaches to treating heart failure, and prepares children, their families, and their caregivers to deal with this serious condition.

Indexed as

RegistriesCardiomyopathy, DilatedCardiomyopathy, HypertrophicCardiotonic AgentsChildCongresses as TopicGrowth DisordersHeart FailureHeart TransplantationHumansIncidenceNational Heart, Lung, and Blood Institute (U.S.)PrevalenceRisk FactorsUnited StatesCardiotonic Agents

Identifiers

PMID20869642
PMCPMC2946942

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.