ArticleHealth expectations : an international journal of public participation in health care and health policy2011
Involving service users in intervention design: a participatory approach to developing a text-messaging intervention to reduce repetition of self-harm.
Article in Health expectations : an international journal of public participation in health care and health policy, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
44 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Virtual Reality for Chronic Pain Management Among Historically Marginalized Populations: Systematic Review of Usability Studies.Journal of medical Internet research · 2023Pooled it
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review.BMC health services research · 2021Pooled it
- Engaging patients to improve quality of care: a systematic review.Implementation science : IS · 2018Pooled it
- 'It just wasn't going to be heard': A mixed methods study to compare different ways of involving people with diabetes and health-care professionals in health intervention research.Health expectations : an international journal of public participation in health care and health policy · 2020Trial
- A comparison between phone-based psychotherapy with and without text messaging support in between sessions for crisis patients.Journal of medical Internet research · 2014Trial
- What should be included in a digital mental health intervention, based on solution-focused therapy, for young people who self-harm? A qualitative exploration of young people and clinicians' views.PLOS digital health · 2026Article
- A Co-Design Study Developing an Early Prototype Intervention to Support Oral Anticancer Medication Use in Breast Cancer.Patient preference and adherence · 2026Article
- Development and testing of mobile phone text messages for improving maternal and newborn care practice in Jimma Zone, Ethiopia: a user-centered design approach.Pilot and feasibility studies · 2025Article
- Practitioner Review: Treatments for young people who self-harm - challenges and recommendations for research and clinical practice.Journal of child psychology and psychiatry, and allied disciplines · 2025Review
- Co-designing discharge communication interventions for mental health visits to the pediatric emergency department: a mixed-methods study.Research involvement and engagement · 2024Article
- Digital Interventions for Adolescents and Young Adults Experiencing Self-Injurious Thoughts and Behaviors.Current treatment options in psychiatry · 2024Article
- From diagnosis to dialogue - reconsidering the DSM as a conversation piece in mental health care: a hypothesis and theory.Frontiers in psychiatry · 2024Article
- Article
- The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review.JMIR mental health · 2023Review
- The added value and unintended negative consequences of public involvement processes in the planning, development and implementation of community health services: Results from a thematic synthesis.The International journal of health planning and management · 2022Article
- Including the voice of paediatric patients: Cocreation of an engagement game.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Involving Crowdworkers with Lived Experience in Content-Development for Push-Based Digital Mental Health Tools: Lessons Learned from Crowdsourcing Mental Health Messages.Proceedings of the ACM on human-computer interaction · 2022Article
- Design, development, and testing of a voice-text mobile health application to support Tuberculosis medication adherence in Uganda.PloS one · 2022Article
- How Technologies Can Support Self-Injury Self-Management: Perspectives of Young Adults With Lived Experience of Nonsuicidal Self-Injury.Frontiers in digital health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
OBJECTIVE To engage a group of people with relevant lived experience in the development of a text-messaging intervention to reduce repetition of self-harm. BACKGROUND Contact-based interventions, such as follow-up letters, postcards and telephone calls, have shown potential to reduce repetition of self-harm in those who present at Accident and Emergency departments. Text messaging offers a low-cost alternative that has not been tested. We set out to develop a text-based intervention. The process of intervention development is rarely reported and little is known about the impact of service user involvement on intervention design. METHOD We held a series of six participatory workshops and invited service users and clinicians to help us work out how to get the right message to the right person at the right time, and to simulate and test prototypes of an intervention. RESULTS Service users rejected both the idea of a generic, 'one size fits all' approach and that of 'audience segmentation', maintaining that text messages could be safe and effective only if individualized. This led us to abandon our original thinking and develop a way of supporting individuals to author their own self-efficacy messages and store them in a personal message bank for withdrawal at times of crisis. CONCLUSIONS This paper highlights both the challenge and the impact of involving consumers at the development stage. Working with those with lived experience requires openness, flexibility and a readiness to abandon or radically revise initial plans, and may have unexpected consequences for intervention design.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.