ArticleBMC medical informatics and decision making2010
The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients.
Article in BMC medical informatics and decision making, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed, 5 syntheses or guidelines pooled it, 79 citations in OpenAlex.
- Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Functions and Outcomes of Personal Health Records for Patients with Chronic Diseases: A Systematic Review.Perspectives in health information managemen · 2021Pooled it
- What Do Patients and Caregivers Want? A Systematic Review of User Suggestions to Improve Patient Portals.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Pooled it
- Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review.BMC medical informatics and decision making · 2015Pooled it
- Patient access to medical records and healthcare outcomes: a systematic review.Journal of the American Medical Informatics Association : JAMIAPooled it
- Strategies to promote the dissemination of psychosocial digital health resources for those affected by cancer: scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Patient and clinician engagement with generative artificial intelligence (GenAI): A scoping review of implications for patient-centered communication.Patient education and counseling · 2026Article
- Perspectives on access to imaging digital health records in oncology: A mixed methods systematic review.Health policy and technology · 2024Review
- Patterns of Access to Radiology Reports and Images Through a Patient Portal.Journal of imaging informatics in medicine · 2024Article
- The paradox of convenience: how information overload in mHealth apps leads to medical service overuse.Frontiers in public health · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- A systematic review of the effectiveness of patient education through patient portals.JAMIA open · 2023Review
- Communication Skills Training for Oncology Clinicians After the 21st Century Cures Act: The Need to Contextualize Patient Portal-Delivered Test Results.JCO oncology practice · 2023Article
- Acceptability and usability of a patient portal for men with prostate cancer in follow-up care.Frontiers in digital health · 2022Article
- Urinary proteomics combined with home blood pressure telemonitoring for health care reform trial: rational and protocol.Blood pressure · 2021Article
- How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review.Journal of medical Internet research · 2021Article
- Perspective of Patients with Metastatic Breast Cancer on Electronic Access to Scan Results: Mixed-Methods Study.Journal of medical Internet research · 2020Article
- Real-Time Access to Electronic Health Record via a Patient Portal: Is it Harmful? A Retrospective Observational Study.Journal of medical Internet research · 2020Observational
- Identifying How Patient Portals Impact Communication in Oncology.Health communication · 2019Article
- Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease.Journal of pediatric hematology/oncology · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 5 institutions in 2 countries.
Funding
Abstract
backgroundPersonal health records (PHRs) provide patients with access to personal health information (PHI) and targeted education. The use of PHRs has the potential to improve a wide range of outcomes, including empowering patients to be more active participants in their care. There are a number of widespread barriers to adoption, including privacy and security considerations. In addition, there are clinical concerns that patients could become anxious or distressed when accessing complex medical information. This study assesses the implementation of a PHR, and its impact on anxiety levels and perceptions of self-efficacy in a sample of breast cancer patients.
methodsA quasi-experimental pre-test/post-test design was used to collect data from participants to evaluate the use of the PHR. Study participants completed background and pre-assessment questionnaires and were then registered into the portal. By entering an activation key, participants were then able to review their lab results and diagnostic imaging reports. After six weeks, participants completed post-assessment questionnaires and usability heuristics. All data were collected using an online survey tool. Data were cleaned and analyzed using SAS v9.1.
resultsA total of 311 breast cancer patients completed demographic and pre-assessment questionnaires, 250 registered to use the online intervention, and 125 participants completed all required study elements. Matching the pre- and post-anxiety scores demonstrated a decrease in mean anxiety scores (-2.2, p = 0.03); the chemotherapy sub-group had a statistically insignificant mean increase (1.8, p = .14). There was no mean change in self-efficacy scores.
conclusionsParticipants generally found the portal easy to use; however, the perceived value of improved participation was not detected in the self-efficacy scores. Having access to personal health information did not increase anxiety levels. While these results suggest that the use of this PHR may be of benefit for informing patients, further research is required to investigate the impact on the patients experiences, their participation in their care, their relationships with the health care team, and their health outcomes.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.