Evidence map›Paper›PMID 20711591›Full record

ArticleRheumatology international2012

Description of the registry of patients with ankylosing spondylitis in Turkey: TRASD-IP.

Hatice Bodur, Sebnem Ataman, Derya Soy Buğdaycı, Aylin Rezvani, Kemal Nas, Kaan Uzunca, Emel Emlakçıoğlu, Altınay Göksel Karatepe, Bekir Durmuş, Melek Sezgin and 21 more

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Rheumatology international, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 3 pooled it
2.9field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 3 syntheses or guidelines pooled it, 54 citations in OpenAlex.

  1. Pooled it
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  19. Relationship between articular and nonarticular manifestations in inflammatory bowel diseases.Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences · 2016
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

31 authors at 20 institutions in 2 countries.

Hatice BodurAnkara Numune Training & Research Hospital, Mürsel Uluç M, 937 S, No: 35/17, 06450 Ankara, Turkey. haticebodur@gmail.com
Sebnem Ataman
Derya Soy Buğdaycı
Aylin Rezvani
Kemal Nas
Kaan Uzunca
Emel Emlakçıoğlu
Altınay Göksel Karatepe
Bekir Durmuş
Melek Sezgin
Figen Ayhan
Pelin Yazgan
Tuncay Duruöz
Mahmut Yener
Alev Gürgan
Mehmet Kırnap
Engin Cakar
Lale Altan
Raikan Soydemir
Erhan Capkın
Ibrahim Tekeoğlu
Gülümser Aydın
Zafer Günendi
Barış Nacır
Ali Sallı
Cihat Oztürk
Asuman Memiş
Yasemin Turan
Erkan Kozanoğlu
Konçuy Sivrioğlu
Türkiye Romatizma Araştırma ve Savaş Derneği [TRASD] (Turkish League Against Rheumatism) Ankylosing Spondylitis [AS] Study Group
Bursa Uludağ Üni̇versi̇tesi̇ · TRAnkara University · TRDicle University · TRIzmir Atatürk Eğitim ve Araştırma Hastanesi · TRManisa Celal Bayar University · TRMinistry of Health · TRVan Yüzüncü Yıl Üniversitesi · TRAnkara Numune Eğitim ve Araştırma Hastanesi · TRBezmialem Foundation University Medical Faculty Hospital · TRCukurova University · TREge University · TRGATA Haydarpaşa Eğitim Hastanesi · TRGazi University · TRHacettepe University · TRInonu University · TRIzmir University · TRKaradeniz Technical University · TRKırıkkale University · TRMersin Üniversitesi · TRSelçuk University · TR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A web-based application patient follow-up program was developed to create a registry of patients with ankylosing spondylitis (AS) by the Turkiye Romatizma Arastirma Savas Dernegi (TRASD) AS Study Group. This study describes the methodological background and patient characteristics. The patient follow-up program is a web-based questionnaire, which contains sections on socio-demographic data, anamnesis, personal and family history, systemic and musculoskeletal examination, laboratory and imaging data and treatment. Between October 1, 2007 and February 28, 2009, 1,381 patients from 41 centers were included in the registry (1,038 males [75.2%]; mean age 39.5 ± 10.7 years). Mean disease duration was 12.1 ± 8.5 years, and mean time from initial symptom to diagnosis was 5 ± 6.8 years (median 2 years). HLA-B27 positivity was detected in 73.7% of 262 patients tested. Manifestations of extraarticular involvement were anterior uveitis (13.2%), psoriasis and other skin and mucous membrane lesions (6%) and inflammatory bowel disease (3.8%). The prevalence of peripheral arthritis was 11.2%. In 51.7% of patients, the Bath AS Disease Activity Index was ≥4. But since our patients consisted of the ones with more severe disease who referred to the tertiary centers and needed a regular follow-up, they may not represent the general AS population. Disease-modifying anti-rheumatic drugs were being used by 41.9% of patients, with 16.4% using anti-TNF agents. TRASD-IP (Izlem Programi: Follow-up program) is the first AS registry in Turkey. Such databases are very useful and provide a basis for data collection from large numbers of subjects. TRASD-IP gives information on the clinical and demographic profiles of patients, and the efficacy and safety of anti-TNF drugs, examines the impact on quality of life, and provides real-life data that may be used in cost-effectiveness analyses.

Indexed as

InternetRegistriesSeverity of Illness IndexSurveys and QuestionnairesAdultAntirheumatic AgentsArthritisComorbidityFemaleFollow-Up StudiesHumansMaleMiddle AgedPrevalenceQuality of LifeRetrospective StudiesAntirheumatic AgentsTumor Necrosis Factor-alpha

Identifiers

PMID20711591
OpenAlexW2029905360

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.