ReviewJournal of genetic counseling2010
Biobanks: importance, implications and opportunities for genetic counselors.
Review in Journal of genetic counseling, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Ethical aspects of human biobanks: a systematic review.Croatian medical journal · 2011Pooled it
- The Need to Set up a Biobank Dedicated to Lymphoid Malignancies: Experience of a Single Center (Laboratory of Clinical and Experimental Pathology, University Côte d'Azur, Nice, France).Journal of personalized medicine · 2023Article
- It is not a big deal: a qualitative study of clinical biobank donation experience and motives.BMC medical ethics · 2022Article
- Views of university students in Jordan towards Biobanking.BMC medical ethics · 2021Article
- Biobanks-A Platform for Scientific and Biomedical Research.Diagnostics (Basel, Switzerland) · 2020Review
- Sustainability in Biobanking.Methods in molecular biology (Clifton, N.J.) · 2019Article
- Population's perspectives toward biobanks in scientific research: a study from Jordan.Pharmacogenomics and personalized medicine · 2019Article
- Banking brains: a pre-mortem "how to" guide to successful donation.Cell and tissue banking · 2018Review
- The Precision Medicine Nation.The Hastings Center report · 2017Article
- Returning Results: Let's Be Honest!Genetic testing and molecular biomarkers · 2017Article
- The Genetic Counselor's Role in Managing Ethical Dilemmas Arising in the Laboratory Setting.Journal of genetic counseling · 2016Review
- Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.Journal of health communication · 2016Article
- Perceptions of tissue storage in a dementia population among spouses and offspring.Journal of genetic counseling · 2015Article
- Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies.Journal of genetic counseling · 2015Article
- Biobanks in the era of personalized medicine: objectives, challenges, and innovation: Overview.The EPMA journal · 2015Review
- Newspaper coverage of biobanks.PeerJ · 2014Article
- A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases.Progress in neurobiology · 2013Review
- A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs.Journal of genetic counseling · 2013Article
- Biobanking: The Melding of Research with Clinical Care.Current genetic medicine reports · 2013Article
- REXIC Project: Retrospective Cross-Sectional Study of Documentation of Informed Consent for Research Biobanking in A Public Research and Teaching Hospital.Journal of public health research · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Biobanks are collections of human biological tissue specimens and related health data. Biobank research hopes to provide novel insights into the genetic component of disease, ultimately leading to a more personalized approach to healthcare. However, biobanks have sparked debate due to the ethical, legal, and social implications surrounding utilization of population samples and data. These controversies include issues of consent, privacy and confidentiality, return of results and data-sharing. This paper provides an overview of the different types and scope of biobanks and an examination of the most pertinent ethical, legal and social considerations surrounding such research, as well as how some of these concerns are being addressed. The paper finishes with a discussion of the relevance of biobanks to the genetic counseling field and concludes that genetic counselors are in a position to make a unique, educated and practical contribution to the ongoing dialogue and direction of biobank research.
Indexed as
Identifiers
20680423What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.