ArticleEuropean journal of oncology nursing : the official journal of European Oncology Nursing Society2011
Feedback of trial results to participants: a survey of clinicians' and patients' attitudes and experiences.
Article in European journal of oncology nursing : the official journal of European Oncology Nursing Society, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Current global practice and implications for future research on disseminating health research results to study participants: A systematic review.PLoS medicine · 2025Pooled it
- Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2012Guideline
- Dissemination of trial results to study participants in Cambodia, Ethiopia and Pakistan: a qualitative study.BMJ open · 2026Trial
- Testing approaches to sharing trial results with participants: The Show RESPECT cluster randomised, factorial, mixed methods trial.PLoS medicine · 2021Trial
- Trial
- Closing the loop: Benefits and challenges of sharing clinical trial results with participants after trial close-out.BMC medical research methodology · 2026Article
- Patient perspective of Hesitancies and strategies to increase cancer clinical trial participation.Journal of clinical and translational science · 2026Article
- Bridging Ontologies of Neurological Conditions: Towards Patient-centered Data Practices in Digital Phenotyping Research and Design.Proceedings of the ACM on human-computer interaction · 2025Article
- Participants' perspectives of the advanced ovarian cancer biomarker study VALTIVE1: a qualitative study.BMJ open · 2025Observational
- Article
- Development and validation of a patient reported experience measure for experimental cancer medicines (PREM-ECM) and their carers (PREM-ECM-Carer).BMC cancer · 2024Article
- A series of workshops to present research findings and fill knowledge gap among adolescent girls and young women on sexual and reproductive health in Lebanon: An example of active knowledge dissemination.Journal of global health · 2023Article
- Patient experiences with patient-reported outcome measures in metastatic breast cancer trials: qualitative interviews.Journal of patient-reported outcomes · 2022Article
- Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.BMC medical ethics · 2022Article
- The relative importance of information items and preferred mode of delivery when disseminating results from trials to participants: A mixed-methods study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.PloS one · 2022Article
- Reflections on contributing to health research: A qualitative interview study with research participants and patient advisors.PloS one · 2022Article
- Translation and validation of the greek version of a questionnaire measuring patient views on participation in clinical trials.BMC health services research · 2021Article
- Oncology patients' experiences in experimental medicine cancer trials: a qualitative study.BMJ open · 2021Article
- Providing trial results to participants in phase III pragmatic effectiveness RCTs: a scoping review.Trials · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
purposeThere is growing interest in the provision of trial results to trial participants. However, there are a number of gaps in the research base relating to the closure of clinical trials and feedback of results to participants.
methodsThe aim of this research was to explore the practice of feeding back trial results to trial participants and to identify best practice in this area. Postal questionnaires were sent to members of the UK National Cancer Research Institute Clinical Studies Groups (NCRI CSG) and to patients over the age of 18 years who completed trial treatment (located in one Cancer Network) during a 16-month period (April 07-July 08).
results145 NCRI CSG member surveys and 81 patient questionnaires were returned. The vast majority of all respondents supported the idea of offering results to trial participants. However, NCRI members and trial participants differed in their opinions about the timing and method for the provision of results.
conclusionThe results provide an insight into the views of these groups in relation to desire for results and practical aspects of results feedback which should inform further investigations into trial management and the practice of feedback of trial results.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.