ArticleHealth expectations : an international journal of public participation in health care and health policy2011
Exploring the influence of service user involvement on health and social care services for cancer.
Article in Health expectations : an international journal of public participation in health care and health policy, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Authentic content as an effective mechanism for embedding patient voices in health innovation: a hypothesis and conceptual framework.Frontiers in health services · 2026Article
- Operationalising Patient Engagement Through the Alberta Cancer Diagnosis Initiative: Recruitment Strategies for Diverse Populations in Health System Improvement.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Commissioning and co-production in health and care services in the United Kingdom and Ireland: An exploratory literature review.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations.Research involvement and engagement · 2023Article
- The nature and content of rumination for head and neck cancer survivors.Frontiers in psychology · 2022Article
- Patient and public involvement facilitators: Could they be the key to the NHS quality improvement agenda?Health expectations : an international journal of public participation in health care and health policy · 2020Article
- The role of patients and carers in diffusing a health-care innovation: A case study of "My Medication Passport".Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Re-orienting health systems through a commissioning approach: finding solutions for improved consumer engagement.Health research policy and systems · 2019Review
- The use of patient feedback by hospital boards of directors: a qualitative study of two NHS hospitals in England.BMJ quality & safety · 2018Article
- Involving "authentic" cancer patients, their caregivers, and multidisciplinary professionals in a quality improvement trajectory in a hospital cancer pathway: a study protocol.Journal of multidisciplinary healthcare · 2018Article
- Patient engagement in the process of planning and designing outpatient care improvements at the Veterans Administration Health-care System: findings from an online expert panel.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- The perceived impact of public involvement in palliative care in a provincial palliative care network in the Netherlands: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Exploring the boundary of a specialist service for adults with intellectual disabilities using a Delphi study: a quantification of stakeholder participation.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- 'Calling executives and clinicians to account': user involvement in commissioning cancer services.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Article
- "I can also serve as an inspiration": a qualitative study of the TB&Me blogging experience and its role in MDR-TB treatment.PloS one · 2014Article
- Facilitating the action of community representatives in a health service: the role of a community participation coordinator.BMC health services research · 2013Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundService user involvement in health and social care is a key policy driver in the UK. In cancer care it is central to developing services which are effective, responsive and accessible to patients. Cancer network partnership groups are set up to enable joint working between service users and health care professionals and to drive service improvements. AIMS AND
objectivesThe aim of this study was to explore the influence of the cancer network partnership groups' service user involvement activities on cancer care.
designThis was a qualitative study involving documentary analysis and in-depth case studies of a sample of partnership groups. SETTING AND
participantsFive partnership groups were purposively selected as case studies from Macmillan regions across the UK; documents were collated from a further five groups. Forty people, including core group members and key stakeholders in cancer services, were interviewed. RESULTS AND
conclusionsThe evidence from this study suggests that cancer network partnership groups are at their most influential at 'grass roots' level - contributing to patient information resources, enhancing access to services, and improving care environments. While such improvements are undoubtedly important to patients, the groups' aim is to influence strategic changes, for example in cancer care commissioning or macro-level policy decision-making. The evolution of open, participatory relationships between service users and professionals, and recognition of the value of experiential knowledge are seen as key factors in influencing cancer care. The provision of dedicated resources to strengthen service user involvement activities is also vital.
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