ArticleEuropean journal of human genetics : EJHG2010
Comparing family members' motivations and attitudes towards genetic testing for hereditary breast and ovarian cancer: a qualitative analysis.
Article in European journal of human genetics : EJHG, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed.
- Understanding Barriers and Motivators of Familial Hypercholesterolemia Genetic Testing: Insights From the Singapore Public.Journal of genetic counseling · 2026Article
- Family Health History Completeness in Prenatal Genetic Counseling: An Exploratory Study at a Single University Hospital.Healthcare (Basel, Switzerland) · 2025Article
- Unselected Population Genetic Testing for Personalised Ovarian Cancer Risk Prediction: A Qualitative Study Using Semi-Structured Interviews.Diagnostics (Basel, Switzerland) · 2022Article
- Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.Patient education and counseling · 2021Article
- What men want: Qualitative analysis of what men with prostate cancer (PCa) want to learn regarding genetic referral, counseling, and testing.The Prostate · 2020Article
- Psychological adaptation to diagnostic genomic sequencing results: The role of hope fulfillment.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2019Article
- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.Journal of family nursing · 2019Article
- Article
- Timing and context: important considerations in the return of genetic results to research participants.Journal of community genetics · 2016Article
- Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.Health communication · 2016Article
- Development of the Informing Relatives Inventory (IRI): Assessing Index Patients' Knowledge, Motivation and Self-Efficacy Regarding the Disclosure of Hereditary Cancer Risk Information to Relatives.International journal of behavioral medicine · 2015Article
- How can psychological science inform research about genetic counseling for clinical genomic sequencing?Journal of genetic counseling · 2015Article
- Accuracy of recall of information about a cancer-predisposing BRCA1/2 gene mutation among patients and relatives.European journal of human genetics : EJHG · 2015Article
- A grounded explanation of why women present with advanced breast cancer.World journal of surgery · 2014Article
- Understanding the impact of genetic testing for inherited retinal dystrophy.European journal of human genetics : EJHG · 2013Article
- The personal experience of parenting a child with juvenile Huntington's disease: perceptions across Europe.European journal of human genetics : EJHG · 2013Article
- Consumer awareness and attitudes about insurance discrimination post enactment of the Genetic Information Nondiscrimination Act.Familial cancer · 2012Article
- A family with autism and rare copy number variants disrupting the Duchenne/Becker muscular dystrophy gene DMD and TRPM3.Journal of neurodevelopmental disorders · 2011Article
- To know or not to know? Not the only question in familial breast cancer risk communication.Ecancermedicalscience · 2011Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Genetic testing for hereditary breast and ovarian cancer reveals significant risk information regarding one's chances of developing cancer that has potential implications for patients and their families. This study reports on the motivations and attitudes of index patients and their relatives towards genetic testing for hereditary breast and ovarian cancer. In total, 10 female index patients and 20 of their relatives were interviewed regarding their experiences of communicating genetic information within their families, and their motivations and attitudes towards genetic testing. The analysis found two types of 'family groups': groups strongly committed to genetic testing and groups uncertain about testing. Within committed family groups, index patients and their relatives felt obliged to be tested for others, leading some relatives to be tested without having fully thought through their decision or the implications of knowing their mutation status. These family groups also described considerations in relation to the value of testing for themselves. In family groups uncertain about testing, relatives had not attended for predictive testing, had postponed decision making until some point in the future or had expressed ambivalence about the value of testing for themselves. Results suggest the value of explicitly acknowledging motivations for genetic testing within the context of family obligations, relationships and communication, and the possible value of involving family members in genetic counselling and decision making from a family's first contact with genetic services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.