ArticleMaternal and child health journal2011
Associations of family-centered care with health care outcomes for children with special health care needs.
Article in Maternal and child health journal, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Risk Factors for Tube Feeding at Discharge in Infants Undergoing Neonatal Surgery for Congenital Heart Disease: A Systematic Review.Pediatric cardiology · 2023Pooled it
- An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation.American journal of respiratory and critical care medicine · 2016Guideline
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- Family-centred care research in paediatrics: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2026Article
- Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity.Clinical practice in pediatric psychology · 2025Article
- Importance of medical home domains on emergency visits using a cross-sectional national survey of US children.BMJ open · 2024Article
- Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings.JAMA network open · 2024Article
- Medical Complexity of Children with Special Healthcare Needs and Healthcare Experiences.Children (Basel, Switzerland) · 2024Article
- Impact of family-centered care in families with children with intellectual disability: A systematic review.Heliyon · 2024Article
- Adverse Childhood Experiences and Family-Centered Care.Journal of prevention (2022) · 2023Article
- Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs.The Journal of pediatrics · 2023Article
- Article
- Mothers' Experiences of Care Coordination for Children with Disabilities: A Qualitative Study.Children (Basel, Switzerland) · 2022Article
- Association between adverse childhood experiences among children with special healthcare needs and dental care utilization.Journal of public health dentistry · 2022Article
- Disparities in Patient- and Family-Centered Care Among Children With Health Conditions.Journal of patient experience · 2022Article
- Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?Journal of autism and developmental disorders · 2021Article
- Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware.Autism research : official journal of the International Society for Autism Research · 2021Article
- Do health literacy disparities explain racial disparities in family-centered care for youths with special health care needs?Patient education and counseling · 2021Article
- Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives.Journal of autism and developmental disorders · 2020Article
- Healthcare access and adverse family impact among U.S. children ages 0-5 years by prematurity status.BMC pediatrics · 2020Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The objective of this study is to examine the association of family-centered care (FCC) with specific health care service outcomes for children with special health care needs (CSHCN). The study is a secondary analysis of the 2005-2006 National Survey of Children with Special Health Care Needs. Receipt of FCC was determined by five questions regarding how well health care providers addressed family concerns in the prior 12 months. We measured family burden by reports of delayed health care, unmet need, financial costs, and time devoted to care; health status, by stability of health care needs; and emergency department and outpatient service use. All statistical analyses used propensity score-based matching models to address selection bias. FCC was reported by 65.6% of respondents (N = 38,915). FCC was associated with less delayed health care (AOR: 0.56; 95% CI: 0.48, 0.66), fewer unmet service needs (AOR: 0.53; 95% CI: 0.47, 0.60), reduced odds of ≥1 h/week coordinating care (AOR: 0.83; 95% CI: 0.74, 0.93) and reductions in out of pocket costs (AOR: 0.88; 95% CI: 0.80, 0.96). FCC was associated with more stable health care needs (AOR: 1.11; 95% CI: 1.01, 1.21), reduced odds of emergency room visits (AOR: 0.90; 95% CI: 0.82, 0.99) and increased odds of doctor visits (AOR: 1.25; 95% CI: 1.14, 1.37). Our study demonstrates associations of positive health and family outcomes with FCC. Realizing the health care delivery benefits of FCC may require additional encounters to build key elements of trust and partnership.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.