ArticleEnvironmental health : a global access science source2010
Institutional review board challenges related to community-based participatory research on human exposure to environmental toxins: a case study.
Article in Environmental health : a global access science source, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Research on neighborhood effects on health in the United States: A systematic review of study characteristics.Social science & medicine (1982) · 2016Pooled it
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- A Personalized Intervention to Increase Environmental Health Literacy and Readiness to Change in a Northern Nevada Population: Effects of Environmental Chemical Exposure Report-Back.International journal of environmental research and public health · 2024Article
- Moving Forward with Reporting Back Individual Environmental Health Research Results.Environmental health perspectives · 2023Article
- Integrating participant feedback and concerns to improve community and individual level chemical exposure assessment reports.BMC public health · 2023Article
- Invited Perspective: Making the Implicit Explicit-Connecting Environmental Health Literacy and Exposure Report-Back.Environmental health perspectives · 2023Article
- Article
- Aligning clinical research ethics with community-engaged and participatory research in the United States.Frontiers in public health · 2023Review
- Factors that Influence Environmental Health Literacy from Returning Polycyclic Aromatic Hydrocarbon Exposure Results.International public health journal · 2023Article
- Challenges and recommendations to improve institutional review boards' review of community-engaged research proposals: A scoping review.Journal of clinical and translational science · 2023Article
- A process for creating data report-back tools to improve equity in environmental health.Environmental health : a global access science source · 2022Article
- Characterizing the Environmental Health Literacy and Sensemaking of Indoor Air Quality of Research Participants.International journal of environmental research and public health · 2022Article
- Identifying Issues and Priorities in Reporting Back Environmental Health Data.International journal of environmental research and public health · 2020Article
- Shifting from "Community-Placed" to "Community-Based" Research to Advance Health Equity: A Case Study of the Heatwaves, Housing, and Health: Increasing Climate Resiliency in Detroit (HHH) Partnership.International journal of environmental research and public health · 2019Article
- Results Communication in Breast Milk Biomonitoring Studies: A Scoping Review and Stakeholder Consultation.Health and human rights · 2019Article
- Designing and Facilitating Collaborative Research Design and Data Analysis Workshops: Lessons Learned in the Healthy Neighborhoods Study.International journal of environmental research and public health · 2019Article
- Community-Engaged Approaches to Address the Ethical Concerns of Maternal Mental Health Disparities Research.Journal of health care for the poor and underserved · 2019Article
- Communicating environmental exposure results and health information in a community-based participatory research study.BMC public health · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundWe report on the challenges of obtaining Institutional Review Board (IRB) coverage for a community-based participatory research (CBPR) environmental justice project, which involved reporting biomonitoring and household exposure results to participants, and included lay participation in research.
methodsWe draw on our experiences guiding a multi-partner CBPR project through university and state Institutional Review Board reviews, and other CBPR colleagues' written accounts and conference presentations and discussions. We also interviewed academics involved in CBPR to learn of their challenges with Institutional Review Boards.
resultsWe found that Institutional Review Boards are generally unfamiliar with CBPR, reluctant to oversee community partners, and resistant to ongoing researcher-participant interaction. Institutional Review Boards sometimes unintentionally violate the very principles of beneficence and justice which they are supposed to uphold. For example, some Institutional Review Boards refuse to allow report-back of individual data to participants, which contradicts the CBPR principles that guide a growing number of projects. This causes significant delays and may divert research and dissemination efforts. Our extensive education of our university Institutional Review Board convinced them to provide human subjects protection coverage for two community-based organizations in our partnership.
conclusionsIRBs and funders should develop clear, routine review guidelines that respect the unique qualities of CBPR, while researchers and community partners can educate IRB staff and board members about the objectives, ethical frameworks, and research methods of CBPR. These strategies can better protect research participants from the harm of unnecessary delays and exclusion from the research process, while facilitating the ethical communication of study results to participants and communities.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.