ArticleHealth expectations : an international journal of public participation in health care and health policy2010
Critical appraisal guidelines for assessing the quality and impact of user involvement in research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03432143 (Community Members as Reviewers of Medical Journal Manuscripts), which is not on this map. Cited by 44 papers, 7 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Community Members as Reviewers of Medical Journal Manuscripts
Who cites it
44 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review.BMC health services research · 2021Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Current trends in patient and public involvement in cancer research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Extent, quality and impact of patient and public involvement in antimicrobial drug development research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Patient and service user engagement in research: a systematic review and synthesized framework.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- Trial
- Co-developing an intervention to facilitate safe and early transition to neonatal home care for very preterm infants: a mixed-method study evaluating the impact of patient and public involvement.Research involvement and engagement · 2025Article
- Nonsteroidal anti-inflammatory drugs for analgesia in intensive care units: a survey of Canadian critical care physicians.Canadian journal of anaesthesia = Journal canadien d'anesthesie · 2024Article
- Co-producing an online patient public community research hub: a qualitative study exploring the perspectives of national institute for health research (NIHR) research champions in England.Research involvement and engagement · 2024Article
- Public and patient involvement: a survey on knowledge, experience and opinions among researchers within a precision oncology European project.BMC cancer · 2023Article
- Patient and public involvement in cancer research: A scoping review.Cancer medicine · 2023Article
- Article
- A scoping review of methods to measure and evaluate citizen engagement in health research.Research involvement and engagement · 2022Article
- The Youth Patient and Public Involvement Café-A youth-led model for meaningful involvement with children and young people.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Nurturing families: One year pilot outcomes for a modified Parent Child Assistance Program in Australia.PLOS global public health · 2022Article
- Patient and public involvement in care home research: Reflections on the how and why of involving patient and public involvement partners in qualitative data analysis and interpretation.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers.Research involvement and engagement · 2021Article
- Patient and public involvement for ethnic minority research: an urgent need for improvement.Journal of the Royal Society of Medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe involvement of service users in the design and conduct of health research has developed significantly in the UK in recent years. Involving service users is now seen as a core component of good research practice for all forms of health research. Given the important role that users have in health research, it is necessary to develop guidelines for their effective involvement. Whilst guidelines are currently being formulated, there remain no criteria with which to assess user involvement in published studies and funding applications.
objectiveThis study offers guidelines for appraising the quality and impact of user involvement in published papers and grant applications.
methodsAppraisal guidelines for user involvement have been developed on the basis of available literature and experiences from studies involving cancer patients and carers in the design and conduct of research.
findingsNine appraisal criteria have been developed. Criteria include issues such as 'Is the rationale for involving users clearly demonstrated?', 'Is the level of user involvement appropriate?', 'Is the recruitment strategy appropriate?', and 'Is the nature of training appropriate?'
conclusionGenerating and applying guidelines is vital if the impact of user involvement agenda in health research is to be understood.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.