ArticleChronic illness2010
Everyday ethics and help-seeking in early rheumatoid arthritis.
Article in Chronic illness, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Candidacy 2.0 (CC) - an enhanced theory of access to healthcare for chronic conditions: lessons from a critical interpretive synthesis on access to rheumatoid arthritis care.BMC health services research · 2024Pooled it
- Symptom complexes at the earliest phases of rheumatoid arthritis: a synthesis of the qualitative literature.Arthritis care & research · 2013Pooled it
- The patient journey in rheumatic and musculoskeletal diseases: a systematic review.EULAR rheumatology open · 2025Article
- Immunosensing for Early Detection of Rheumatoid Arthritis Biomarkers: Anti-Cyclic Citrullinated Peptide Antibodies Based on Tilted-Fiber Bragg Grating Biosensor.Bioengineering (Basel, Switzerland) · 2023Article
- Barriers to the Diagnosis of Early Inflammatory Arthritis: A Literature Review.Open access rheumatology : research and reviews · 2023Review
- Article
- A quarter of patients time their early rheumatoid arthritis onset differently than physicians.RMD open · 2019Observational
- Use of Animal and Animal Products for Rheumatoid Arthritis Treatment: An Explorative Study in Odisha, India.Frontiers in medicine · 2019Article
- [Rheumatology in the mirror of media and advertising exemplified by the Rheumazentrum Rhein-Ruhr].Zeitschrift fur Rheumatologie · 2018Review
- Improving treatment adherence in patients with rheumatoid arthritis: what are the options?International journal of clinical rheumatology · 2015Article
- eHealth, Participatory Medicine, and Ethical Care: A Focus Group Study of Patients' and Health Care Providers' Use of Health-Related Internet Information.Journal of medical Internet research · 2015Article
- The ethical challenges in rheumatology.Current reviews in musculoskeletal medicine · 2015Article
- A qualitative investigation of the barriers to help-seeking among members of the public presented with symptoms of new-onset rheumatoid arthritis.The Journal of rheumatology · 2015Article
- Women's accounts of help-seeking in early rheumatoid arthritis from symptom onset to diagnosis.Chronic illness · 2014Article
- A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.BMC musculoskeletal disorders · 2014Article
- Exploring eHealth Ethics and Multi-Morbidity: Protocol for an Interview and Focus Group Study of Patient and Health Care Provider Views and Experiences of Using Digital Media for Health Purposes.JMIR research protocols · 2013Article
- The practitioner proposes a treatment change and the patient declines: what to do next?Pain practice : the official journal of World Institute of Pain · 2013Article
- Article
- Communications between volunteers and health researchers during recruitment and informed consent: qualitative content analysis of email interactions.Journal of medical Internet research · 2011Article
- "Delivering knowledge and advice": Healthcare providers' experiences of their interaction with patients' management of rheumatoid arthritis.International journal of qualitative studies on health and well-being · 2011Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundSociological understandings of chronic illness have revealed tensions and complexities around help-seeking. Although ethics underpins healthcare, its application in the area of chronic illness is limited. Here we apply an ethical framework to interview accounts and identify ethical challenges in the early rheumatoid arthritis (RA) experience.
methodsIn-depth interviews were conducted with eight participants who had been diagnosed with RA in the 12 months prior to recruitment. Applying the concepts of autonomous decision-making and procedural justice highlighted ethical concerns which arose throughout the help-seeking process. Analysis was based on the constant-comparison approach.
resultsIndividuals described decision-making, illness actions and the medical encounter. The process was complicated by inadequate knowledge about symptoms, common-sense understandings about the GP appointment, difficulties concerning access to specialists, and patient-practitioner interactions. Autonomous decision-making and procedural justice were compromised. The accounts revealed contradictions between the policy ideals of active self-management, patient-centred care and shared decision-making, and the everyday experiences of individuals.
conclusionsFor ethical healthcare there is a need for: public knowledge about early RA symptoms; more effective patient-practitioner communication; and increased support during the wait between primary and secondary care. Healthcare facilities and the government may consider different models to deliver services to people requiring rheumatology consults.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.