ArticleCanadian journal of public health = Revue canadienne de sante publique
Public opinions about participating in health research.
Article in Canadian journal of public health = Revue canadienne de sante publique. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- "Giving something back": A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland.Wellcome open research · 2018Pooled it
- Vietnamese University Students' Perceptions and Attitudes Toward Participation in Clinical Research: Mixed Methods Study.Journal of participatory medicine · 2026Article
- Public Opinions from Malawian and Malawi Refugee Camp Residents of Wastewater and Environmental Surveillance.The American journal of tropical medicine and hygiene · 2025Article
- Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic.PloS one · 2022Observational
- Producers of Engineered Nanomaterials-What Motivates Company and Worker Participation in Biomonitoring Programs?International journal of environmental research and public health · 2021Article
- Clinical trials: Predictors of knowledge and attitudes towards participation.International journal of clinical practice · 2021Article
- Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond.Learning health systems · 2019Article
- Learning from older peoples' reasons for participating in demanding, intensive epidemiological studies: a qualitative study.BMC medical research methodology · 2017Article
- Perceptions and attitudes to clinical research participation in Qatar.Contemporary clinical trials communications · 2017Article
- A telephone survey of factors affecting willingness to participate in health research surveys.BMC public health · 2015Article
- Why do people participate in epidemiological research?Journal of bioethical inquiry · 2015Article
- Recruitment for Occupational Research: Using Injured Workers as the Point of Entry into Workplaces.PloS one · 2013Article
- Well-done meat intake and meat-derived mutagen exposures in relation to breast cancer risk: the Nashville Breast Health Study.Breast cancer research and treatment · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesPrivacy legislation has limited options for recruiting subjects to health studies. Policy changes are motivated by assumptions about public attitudes towards participation, yet surveys of attitudes have rarely been done. We investigated public willingness to participate in health research and how willingness was affected by various factors.
methodsA survey of adults randomly selected from the telephone directory was conducted in British Columbia, Canada. Mailed self-administered questionnaires asked about willingness to participate in health research and the influence on willingness of the method of subject selection, the organization making the contact, and other factors.
resultsThere were 1,477 respondents (58% of eligible); 85% were willing to participate in health research at least sometimes. The organization making the contact influenced comfort about participation: 10% of respondents felt uncomfortable if contacted by a university, 12% if by a hospital, 26% if by government, and 55% if by private research firms. Factors most positively influencing choice to participate were future health benefits to society (87%) and oneself (87%), and receiving a copy of the study results (81%).
conclusionsParticipation in health research appears to be viewed favourably by members of the public, and participation may be highest when university or hospital-based researchers are able to contact subjects directly using information from government databases.
Indexed as
Identifiers
20524383PMC6974298What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.