ArticleJournal of deaf studies and deaf education2010
Deaf adults' reasons for genetic testing depend on cultural affiliation: results from a prospective, longitudinal genetic counseling and testing study.
Article in Journal of deaf studies and deaf education, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 36 citations in OpenAlex.
- Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study.Disability and health journal · 2017Trial
- Autistic perspectives on the moral and ethical considerations of genetic testing for autism.European journal of human genetics : EJHG · 2025Article
- Future directions for screening and treatment in congenital hearing loss.Precision clinical medicine · 2020Article
- Is it ever morally permissible to select for deafness in one's child?Medicine, health care, and philosophy · 2020Article
- In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research.Public health genomics · 2020Article
- Reprogenetics, reproductive risks and cultural awareness: what may we learn from Israeli and Croatian medical students?BMC medical ethics · 2019Article
- "My Plate is Full": Reasons for Declining a Genetic Evaluation of Hearing Loss.Journal of genetic counseling · 2018Article
- Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.Journal of genetic counseling · 2018Article
- Opinions of hearing parents about the causes of hearing impairment of their children with biallelic GJB2 mutations.Journal of community genetics · 2017Article
- Attitudes Toward Autism Spectrum Disorders Among Students of Allied Health Professions.Journal of genetic counseling · 2016Article
- Impact of Genetic Counseling and Testing on Altruistic Motivations to Test for BRCA1/2: a Longitudinal Study.Journal of genetic counseling · 2016Article
- Perception of Genetic Testing for Deafness and Factors Associated with Interest in Genetic Testing Among Deaf People in a Selected Population in Sub-Saharan Africa.Journal of genetic counseling · 2015Article
- Assessing deaf awareness training: knowledge and attitudes of recent genetic counseling graduates.Journal of genetic counseling · 2015Article
- Motivation to pursue genetic testing in individuals with a personal or family history of cardiac events or sudden cardiac death.Journal of genetic counseling · 2014Article
- Article
- Using a social marketing framework to evaluate recruitment of a prospective study of genetic counseling and testing for the deaf community.BMC medical research methodology · 2013Article
- Deaf genetic testing and psychological well-being in deaf adults.Journal of genetic counseling · 2013Article
- Effect of pre-test genetic counseling for deaf adults on knowledge of genetic testing.Journal of genetic counseling · 2012Article
- Access to genetic testing and genetic counseling in vulnerable populations: the d/Deaf and hard of hearing population.Journal of community genetics · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 2 institutions in 1 country.
Funding
Abstract
This article examines the relationship between cultural affiliation and deaf adults' motivations for genetic testing for deafness in the first prospective, longitudinal study to examine the impact of genetic counseling and genetic testing on deaf adults and the deaf community. Participants (n = 256), classified as affiliating with hearing, Deaf, or both communities, rated interest in testing for 21 reasons covering 5 life domains. Findings suggest strong interest in testing to learn why they are deaf, but little interest in using it for decisions about a partner or having children. Culturally mediated variation was also demonstrated. Deaf and both communities groups viewed testing as useful for more life domains than the hearing community group. Deaf and both communities had similar motivations related to further exploration, understanding, or strengthening of deafness. Motivations related to "hearing" were also relevant for both communities. We conclude that cultural affiliation is an important factor for constructing motivations for genetic testing.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.