Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

11 citing papers in PubMed.

1. Three decades of genetic privacy: a metaphoric journey.Human molecular genetics · 2021
   Review
2. Rethinking the ethical principles of genomic medicine services.European journal of human genetics : EJHG · 2020
   Article
3. Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine.Frontiers in medicine · 2019
   Article
4. Biospecimens and Biobanking in Global Health.Clinics in laboratory medicine · 2018
   Review
5. Precision medicine driven by cancer systems biology.Cancer metastasis reviews · 2017
   Article
6. Samples and data accessibility in research biobanks: an explorative survey.PeerJ · 2016
   Article
7. Addressing Benefits, Risks and Consent in Next Generation Sequencing Studies.Journal of clinical research & bioethics · 2015
   Article
8. Identifiability and privacy in pluripotent stem cell research.Cell stem cell · 2014
   Article
9. Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.European journal of human genetics : EJHG · 2013
   Article
10. 'Sifting the significance from the data' - the impact of high-throughput genomic technologies on human genetics and health care.Human genomics · 2012
    Article
11. Biobanks and the phantom public.Human genetics · 2011
    Article

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

Authors and funding

1 author.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

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