ArticleGenome research2010
Ethical challenges in genotype-driven research recruitment.
Article in Genome research, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evidence for penetrance in patients without a family history of disease: a systematic review.European journal of human genetics : EJHG · 2020Pooled it
- How to communicate and what to disclose to participants in a recall-by-genotype research approach: a multistep empirical study.Journal of community genetics · 2024Article
- Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study.European journal of human genetics : EJHG · 2023Article
- Influence of family history on penetrance of hereditary cancers in a population setting.EClinicalMedicine · 2023Article
- Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review.European journal of human genetics : EJHG · 2022Article
- Balancing scientific interests and the rights of participants in designing a recall by genotype study.European journal of human genetics : EJHG · 2021Article
- Formalising recall by genotype as an efficient approach to detailed phenotyping and causal inference.Nature communications · 2018Review
- The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants.PloS one · 2018Article
- Genotype-based recall to study metabolic effects of genetic variation: a pilot study of PPARG Pro12Ala carriers.Upsala journal of medical sciences · 2017Article
- Precision medicine informatics.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Genetic testing preferences in families containing multiple individuals with epilepsy.Epilepsia · 2014Article
- Genotype-driven recruitment: a strategy whose time has come?BMC medical genomics · 2013Article
- Am I a control?: Genotype-driven research recruitment and self-understandings of study participants.Genetics in medicine : official journal of the American College of Medical Genetics · 2012Article
- Recommendations for ethical approaches to genotype-driven research recruitment.Human genetics · 2012Article
- Offering aggregate results to participants in genomic research: opportunities and challenges.Genetics in medicine : official journal of the American College of Medical Genetics · 2012Article
- Getting personalized cancer genome analysis into the clinic: the challenges in bioinformatics.Genome medicine · 2012Review
- Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.Journal of empirical research on human research ethics : JERHRE · 2011Article
- Epilepsy patient-participants and genetic research results as "answers".Journal of empirical research on human research ethics : JERHRE · 2011Article
- Research participants' perspectives on genotype-driven research recruitment.Journal of empirical research on human research ethics : JERHRE · 2011Article
- Bridging consent: from toll bridges to lift bridges?BMC medical genomics · 2011Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
PubMed holds no abstract for this paper.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.