ArticleJournal of genetic counseling2010
Women's experience of telehealth cancer genetic counseling.
Article in Journal of genetic counseling, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 3 syntheses or guidelines pooled it, 73 citations in OpenAlex.
- Patients' Experiences of Healthcare Professionals' Competence in Digital Counselling in Healthcare Settings-A Qualitative Systematic Review.Journal of advanced nursing · 2025Pooled it
- Pooled it
- Implementation factors and their effect on e-Health service adoption in rural communities: a systematic literature review.BMC health services research · 2013Pooled it
- Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance.Journal of genetic counseling · 2015Trial
- The use of telephone in genetic counseling versus in-person counseling: a randomized study on counselees' outcome.Familial cancer · 2012Trial
- Perspectives of Women of Advanced Maternal Age on Telephonic Genetic Counselling in a South African Public Healthcare Setting.Prenatal diagnosis · 2025Article
- Experiences Receiving and Delivering Virtual Health Care For Women: Qualitative Evidence Synthesis.Journal of medical Internet research · 2025Article
- Genetic Services in Appalachia Conference Series.American journal of medical genetics. Part A · 2025Article
- Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context.Journal of genetic counseling · 2025Article
- Randomized Trial of Telegenetic Counseling for Gene Testing in Huntington Disease.Neurology. Clinical practice · 2025Article
- Exploring family communication preferences in hereditary breast and ovarian cancer and Lynch syndrome: a national Canadian survey.Journal of community genetics · 2024Article
- Perceptions of adult patients with cancer towards telemedicine: A qualitative meta-synthesis.Asia-Pacific journal of oncology nursing · 2024Review
- Helping Patients Understand and Cope with BRCA Mutations.Current oncology reports · 2022Review
- Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic.JCO oncology practice · 2022Article
- Transformation to telephonic genetic counselling during SARS-CoV-2 pandemic: challenges and suggested protocol in Indian scenario.Journal of genetics · 2022Article
- Rapid implementation of telegenetic services during the COVID-19 pandemic allowed continuing patient access, but not equally for all.Health and technology · 2022Article
- Rapid Implementation of Telegenetic Counseling in the COVID-19 and Swedish Healthcare Context: A Feasibility Study.Frontiers in health services · 2022Article
- "There's a huge benefit just to know that someone cares:" a qualitative examination of rural veterans' experiences with TelePain.BMC health services research · 2021Article
- Transitioning to telegenetics in the COVID-19 era: Patient satisfaction with remote genetic counseling in adult neurology.Journal of genetic counseling · 2021Article
- The Research on Patient Satisfaction with Remote Healthcare Prior to and during the COVID-19 Pandemic.International journal of environmental research and public health · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Telegenetics offers an alternative model of delivering genetic counseling to rural and outreach areas; however there is a dearth of qualitative research into the patient's experience. Twelve women who had received telemedicine genetic counseling for hereditary breast and/or ovarian cancer (HBOC) within the previous 12 months participated in a semi-structured telephone interview. The interview explored women's experience with telegenetics, satisfaction, perceived advantages and disadvantages and quality of the interaction with their genetic professionals. Overall women were highly satisfied with telegenetics. Telegenetics offered them convenience and reduced travel and associated costs. The majority of women described feeling a high degree of social presence, or rapport, with the off-site genetic clinician. One woman with a recent cancer diagnosis, reported that telemedicine was unable to meet her needs for psychosocial support. This finding highlights the need to be mindful of the psychosocial support needs of women with a recent diagnosis being seen via telegenetics. Patients attending for HBOC genetic counseling are generally highly satisfied with the technology and the interaction. Care should be taken, however, with patients with more complex psychosocial needs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.