ArticleJournal of genetic counseling2010
"The cancer bond": exploring the formation of cancer risk perception in families with Lynch syndrome.
Article in Journal of genetic counseling, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.
- Characterization of the Hispanic or latino population in health research: a systematic review.Journal of immigrant and minority health · 2014Pooled it
- Heterogeneity in the psychosocial and behavioral responses associated with a diagnosis of suspected Lynch syndrome in women with endometrial cancer.Hereditary cancer in clinical practice · 2022Article
- Patient-Reported Outcomes following Genetic Testing for Familial Hypercholesterolemia, Breast and Ovarian Cancer Syndrome, and Lynch Syndrome: A Systematic Review.Journal of personalized medicine · 2021Review
- The structure of emotional support networks in families affected by Lynch syndrome.Network science (Cambridge University Press) · 2020Article
- Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations.Family process · 2020Article
- Intergenerational exchange of healthful eating encouragement: Consideration of family ancestry and disease history.Families, systems & health : the journal of collaborative family healthcare · 2019Article
- Psychosocial Effects of Multigene Panel Testing in the Context of Cancer Genomics.The Hastings Center report · 2019Article
- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.Journal of family nursing · 2019Article
- Communication about Congenital Adrenal Hyperplasia: Perspective of Filipino Families.Journal of genetic counseling · 2017Article
- From older to younger: intergenerational promotion of health behaviours in Portuguese families affected by familial amyloid polyneuropathy.European journal of human genetics : EJHG · 2017Article
- It's Interpersonal: Family Relationships, Genetic Risk, and Caregiving.The Gerontologist · 2017Article
- Modeling the dyadic effects of parenting, stress, and coping on parent-child communication in families tested for hereditary breast-ovarian cancer risk.Familial cancer · 2016Article
- Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Balancing life with an increased risk of cancer: lived experiences in healthy individuals with Lynch syndrome.Journal of genetic counseling · 2014Article
- Latino men and familial risk communication about prostate cancer.Oncology nursing forum · 2014Article
- Sense of coherence and self-concept in Lynch syndrome.Hereditary cancer in clinical practice · 2013Article
- 100 years Lynch syndrome: what have we learned about psychosocial issues?Familial cancer · 2013Review
- Families' experience of oncogenetic counselling: accounts from a heterogeneous hereditary cancer risk population.Familial cancer · 2012Article
- Understanding patterns of health communication in families at risk for hereditary nonpolyposis colorectal cancer: examining the effect of conclusive versus indeterminate genetic test results.Health communication · 2011Article
- Psychological impact of von Hippel-Lindau genetic screening in patients with a previous history of hemangioblastoma of the central nervous system.Journal of psychosocial oncologyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 5 institutions in 1 country.
Funding
Abstract
This study explores the social context of hereditary cancer risk perception in three families, an African-American family, a Mexican-American family, and a Caucasian family, each with Lynch Syndrome documented by a mismatch repair gene mutation. Communication network assessments measured family communication about cancer experiences and genetic testing information among a total of 26 participants. Participant narratives were evaluated to gain insight into how family cancer experiences and genetic testing information have shaped perceptions of cancer risk. Analysis of communication networks indicated that some families discussed cancer experiences to a greater extent than genetic testing information, and vice-versa. Interviews elucidated that sharing both types of health information led participants to conceptualize linkages among a strong family history of cancer, genetic testing information, and cancer prevention strategies. Understanding how different types of family communication influence the formation of perceived hereditary disease risk may enhance efforts to tailor genetic counseling services for families.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.