ArticlePediatric nephrology (Berlin, Germany)2010
Quality of life in children with chronic kidney disease (with child and parent assessments).
Article in Pediatric nephrology (Berlin, Germany), 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.
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Who cites it
40 citing papers in PubMed, 1 synthesis or guideline pooled it, 96 citations in OpenAlex.
- Impact of chronic kidney disease on health-related quality of life in the pediatric population: meta-analysis.Jornal de pediatriaPooled it
- Health-related quality of life in children with chronic kidney disease: clinical predictors and ROC-derived thresholds for impaired HRQoL.Pediatric nephrology (Berlin, Germany) · 2026Article
- Aligning Words With What Matters: Evaluation of a Nationwide Sample of Pediatric Kidney Transplant Educational Materials.Pediatric transplantation · 2026Article
- Sociodemographic, health, and oral factors associated with health-related quality of life in children and adolescents with chronic kidney disease: a cross-sectional study.BMC public health · 2026Observational
- Impact of posterior urethral valve on patient quality of life and caregiver burden.World journal of urology · 2025Article
- Evaluation of health-related quality of life in cats with chronic kidney disease.Journal of feline medicine and surgery · 2025Article
- Quality of life in children at different stages of chronic kidney disease in a developing country.Pediatric nephrology (Berlin, Germany) · 2025Article
- Dealing with missing data in multi-informant studies: A comparison of approaches.Behavior research methods · 2024Article
- Social determinants of health and quality of life in children with chronic kidney disease: insights from Saudi Arabia.BMC nephrology · 2024Observational
- Holistic care and symptom management for pediatric kidney transplant recipients.Pediatric nephrology (Berlin, Germany) · 2024Article
- Life outcomes after paediatric kidney transplantation: a qualitative, biographical study in long-term survivors.Archives of disease in childhood · 2024Article
- Illness-related parental stress and quality of life in children with kidney diseases.Pediatric nephrology (Berlin, Germany) · 2023Article
- Illness-related parental stress and quality of life in children with kidney diseases.Pediatric nephrology (Berlin, Germany) · 2023Article
- Caregiver perspectives of dialysis initiation for children with kidney disease: a qualitative study.Pediatric nephrology (Berlin, Germany) · 2022Article
- Fatigue and Quality of Life in Children with Chronic Kidney Disease.Children (Basel, Switzerland) · 2022Article
- Validity and reliability of the Dutch version of the PedsQL™ 3.0 End Stage Renal Disease Module in children with chronic kidney disease in Belgium.Pediatric nephrology (Berlin, Germany) · 2022Article
- Evaluation of caregiver burden and coping strategies in parents of paediatric familial Mediterranean fever patients in relation to illness severity, therapy and health-related quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Psychosocial considerations and recommendations for care of pediatric patients on dialysis.Pediatric nephrology (Berlin, Germany) · 2020Review
- Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.BMC nephrology · 2019Article
- Health-related quality of life changes following renal transplantation in children.Pediatric transplantation · 2019Article
Corrections and comments
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Authors and funding
16 authors at 10 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Herein the results of a multicenter study from the Turkish Pediatric Kidney Transplantation Study Group are reported. The aims of this study were to compare the quality of life (QoL) scores of Turkish children who are dialysis patients (DP), renal transplant recipients (TR), and age-matched healthy controls and to compare child-self and parent-proxy scores. The Turkish versions of the Kinder Lebensqualität Fragebogen (KINDL(R)) questionnaires were used as a QoL measure. The study group consisted of 211 children and adolescents with chronic kidney disease (CKD) (139 TR and 72 DP aged between 4-18 years; 13.7 +/- 3.5 years) from 11 university hospitals, 129 parents of these patients, 232 age-matched healthy children and adolescents (aged between 4-18 years; 13.1+/-3.5 years) and 156 of their parents. Patients with CKD had lower scores in all subscales except for physical well-being than those in the control group. TR had higher scores in physical well-being, self-esteem, friends' subscales, and total scores than DP. Child-self scores were lower than parent-proxy scores, especially in CKD, DP, and control groups. Concordance between parent-proxy and child-self reports in the TR, DP, CKD, and control groups was only moderate for the majority of subscales (r = 0.41-0.61). It was concluded that parent-proxy scores on the QoL were not equivalent to child-self scores and that evaluating both children's and parents' perspectives were important. Additionally, psychosocial counseling is crucial not only for patients with CKD but also for their parents.
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