ArticleScience translational medicine2010
Meeting the governance challenges of next-generation biorepository research.
Article in Science translational medicine, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed.
- Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.AJOB empirical bioethicsTrial
- Identifying High-Priority Ethical Challenges for Precision Emergency Medicine: Nominal Group Study.JMIR formative research · 2025Article
- Exploring public concerns for sharing and governance of personal health information: a focus group study.JAMIA open · 2021Article
- Knowledge, perceptions and attitude of Egyptian physicians towards biobanking issues.PloS one · 2021Article
- Paying Tribute to Henrietta Lacks at Tuskegee University and at The Virginia Henrietta Lacks Commission, Richmond, Virginia.Journal of health care for the poor and underserved · 2019Article
- Current practices for access, compensation, and prioritization in biobanks. Results from an interview study.European journal of human genetics : EJHG · 2018Article
- Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.The American journal of bioethics : AJOB · 2018Article
- Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2018Article
- Translating Biobank Science into Patient-Centered Language.Biopreservation and biobanking · 2018Article
- Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study.European journal of human genetics : EJHG · 2017Article
- Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.Annual review of genomics and human genetics · 2016Review
- Simulating the contribution of a biospecimen and clinical data repository in a phase II clinical trial: A value of information analysis.Statistical methods in medical research · 2016Article
- Qualitative study on custodianship of human biological material and data stored in biobanks.BMC medical ethics · 2016Article
- Respecting Autonomy Over Time: Policy and Empirical Evidence on Re-Consent in Longitudinal Biomedical Research.Bioethics · 2016Article
- Consent Issues in Genetic Research: Views of Research Participants.Public health genomics · 2016Article
- Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement.Journal of empirical research on human research ethics : JERHRE · 2015Article
- The translational potential of research on the ethical, legal, and social implications of genomics.Genetics in medicine : official journal of the American College of Medical Genetics · 2015Review
- Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Challenges of web-based personal genomic data sharing.Life sciences, society and policy · 2015Article
- SecureMA: protecting participant privacy in genetic association meta-analysis.Bioinformatics (Oxford, England) · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Advances in clinical translational research have led to an explosion of interest in infrastructure development and data sharing facilitated by biorepositories of specimens and linked health information. These efforts are qualitatively different from the single-center sample collections that preceded them and pose substantial new ethics and regulatory challenges for investigators and institutions. New research governance approaches, which can address current and anticipated challenges, promote high-quality research, and provide a robust basis for ongoing research participation, are urgently required.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.