Evidence map›Paper›PMID 20361870›Full record

ArticleBMC medical informatics and decision making2010

A method for managing re-identification risk from small geographic areas in Canada.

Khaled El Emam, Ann Brown, Philip AbdelMalik, Angelica Neisa, Mark Walker, Jim Bottomley, Tyson Roffey

Abstract readComparative Study
In one paragraph

Article in BMC medical informatics and decision making, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Anonymisation of geographical distance matrices via Lipschitz embedding.International journal of health geographics · 2016
    Article
  6. Estimating the re-identification risk of clinical data sets.BMC medical informatics and decision making · 2012
    Article
  7. The re-identification risk of Canadians from longitudinal demographics.BMC medical informatics and decision making · 2011
    Article
  8. A secure protocol for protecting the identity of providers when disclosing data for disease surveillance.Journal of the American Medical Informatics Association : JAMIA · 2011
    Article
  9. Article
  10. Understanding identifiability in secondary health data.Canadian journal of public health = Revue canadienne de sante publique
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Khaled El EmamChildren's Hospital of Eastern Ontario Research Institute, 401 Smyth Road, Ottawa, Ontario K1J 8L1, Canada. kelemam@uottawa.ca
Ann Brown
Philip AbdelMalik
Angelica Neisa
Mark Walker
Jim Bottomley
Tyson Roffey

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundA common disclosure control practice for health datasets is to identify small geographic areas and either suppress records from these small areas or aggregate them into larger ones. A recent study provided a method for deciding when an area is too small based on the uniqueness criterion. The uniqueness criterion stipulates that an the area is no longer too small when the proportion of unique individuals on the relevant variables (the quasi-identifiers) approaches zero. However, using a uniqueness value of zero is quite a stringent threshold, and is only suitable when the risks from data disclosure are quite high. Other uniqueness thresholds that have been proposed for health data are 5% and 20%.

methodsWe estimated uniqueness for urban Forward Sortation Areas (FSAs) by using the 2001 long form Canadian census data representing 20% of the population. We then constructed two logistic regression models to predict when the uniqueness is greater than the 5% and 20% thresholds, and validated their predictive accuracy using 10-fold cross-validation. Predictor variables included the population size of the FSA and the maximum number of possible values on the quasi-identifiers (the number of equivalence classes).

resultsAll model parameters were significant and the models had very high prediction accuracy, with specificity above 0.9, and sensitivity at 0.87 and 0.74 for the 5% and 20% threshold models respectively. The application of the models was illustrated with an analysis of the Ontario newborn registry and an emergency department dataset. At the higher thresholds considerably fewer records compared to the 0% threshold would be considered to be in small areas and therefore undergo disclosure control actions. We have also included concrete guidance for data custodians in deciding which one of the three uniqueness thresholds to use (0%, 5%, 20%), depending on the mitigating controls that the data recipients have in place, the potential invasion of privacy if the data is disclosed, and the motives and capacity of the data recipient to re-identify the data.

conclusionThe models we developed can be used to manage the re-identification risk from small geographic areas. Being able to choose among three possible thresholds, a data custodian can adjust the definition of "small geographic area" to the nature of the data and recipient.

Indexed as

Small-Area AnalysisCanadaData CollectionDisclosureHumansLogistic ModelsRiskUrban Population

Identifiers

PMID20361870
PMCPMC2858714

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.