ArticleJournal of genetic counseling2010
Couples' attributions for work function changes in prodromal Huntington disease.
Article in Journal of genetic counseling, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Article
- Perceived Effects of Neuropsychiatric Symptoms on Functional Status in Early-stage Huntington Disease.Western journal of nursing research · 2022Article
- Factors Associated With End-of-Life Planning in Huntington Disease.The American journal of hospice & palliative care · 2018Article
- New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016Article
- Validity of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) in individuals with Huntington disease (HD).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
- Onset of Huntington's disease: can it be purely cognitive?Movement disorders : official journal of the Movement Disorder Society · 2014Article
- WHODAS 2.0 in prodromal Huntington disease: measures of functioning in neuropsychiatric disease.European journal of human genetics : EJHG · 2014Article
- Couples' coping in prodromal Huntington disease: a mixed methods study.Journal of genetic counseling · 2012Article
- Development of the Huntington disease work function scale.Journal of occupational and environmental medicine · 2012Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
People who have tested positive for the expanded Huntington disease (HD) gene who are not yet diagnosed (pre-HD) and their companions report subtle changes in ability of people with pre-HD to do their jobs. However, it is not known whether they attribute these changes to HD. Semi-structured telephone interviews were analyzed from seven persons with pre-HD at different estimated points from diagnosis and six companions. Data were analyzed using qualitative analysis methods. Participants made attributions related to health, work, and temperament. Only one participant attributed a change to HD. The process of forming attributions was demonstrated through symptom monitoring and comparison of participants with pre-HD to others with and without HD. Participants also expressed uncertainty regarding how to make attributions. Attributions influence coping procedures, including whether to seek and accept medical treatment. In persons with prodromal HD the relationship between attributions and use of coping strategies for symptoms that interfere with job functioning is unknown.
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Registered trials
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