ArticleAIDS care2010
The complexity of consent: women's experiences testing for HIV at an antenatal clinic in Durban, South Africa.
Article in AIDS care, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 4 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
20 citing papers in PubMed, 4 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- Women's experiences of discussing health behaviours within their maternity care: a systematic review and meta-synthesis.Reproductive health · 2026Pooled it
- Barriers and facilitators to HIV and syphilis rapid diagnostic testing in antenatal care settings in low-income and middle-income countries: a systematic review.BMJ global health · 2022Pooled it
- Pooled it
- A systematic review of qualitative findings on factors enabling and deterring uptake of HIV testing in Sub-Saharan Africa.BMC public health · 2013Pooled it
- Incident pregnancy and mental health among adolescent girls and young women in rural KwaZulu-Natal, South Africa: an observational cohort study.International journal of adolescence and youth · 2024Article
- "But I Gathered My Courage": HIV Self-Testing as a Pathway of Empowerment Among Ugandan Female Sex Workers.Qualitative health research · 2021Article
- Article
- The psychology of "cure" - unique challenges to consent processes in HIV cure research in South Africa.BMC medical ethics · 2019Article
- Maternal Decision-Making and Uptake of Health Services for the Prevention of Mother-to-Child HIV Transmission: A Secondary Analysis.Maternal and child health journal · 2019Article
- 'I wanted to safeguard the baby': a qualitative study to understand the experiences of Option B+ for pregnant women and the potential implications for 'test-and-treat' in four sub-Saharan African settings.Sexually transmitted infections · 2017Article
- HIV testing experiences and their implications for patient engagement with HIV care and treatment on the eve of 'test and treat': findings from a multicountry qualitative study.Sexually transmitted infections · 2017Article
- Challenges in the delivery of public HIV testing and counselling (HTC) in Douala, Cameroon: providers perspectives and implications on quality of HTC services.BMC international health and human rights · 2017Article
- Ethical issues surrounding the provider initiated opt--Out prenatal HIV screening practice in Sub-Saharan Africa: a literature review.BMC medical ethics · 2015Review
- Informed consent for HIV cure research in South Africa: issues to consider.BMC medical ethics · 2015Article
- Quality, not just quantity: lessons learned from HIV testing in Salvador, Brazil.Global public health · 2014Article
- Could you have said no? A mixed-methods investigation of consent to HIV tests in four African countries.Journal of the International AIDS Society · 2014Article
- Double disclosure bind: complexities of communicating an HIV diagnosis in the context of unintended pregnancy in Durban, South Africa.AIDS and behavior · 2014Article
- From caution to urgency: the evolution of HIV testing and counselling in Africa.Bulletin of the World Health Organization · 2012Review
- The burden of knowing: balancing benefits and barriers in HIV testing decisions. a qualitative study from Zambia.BMC health services research · 2012Article
- Associations between mode of HIV testing and consent, confidentiality, and referral: a comparative analysis in four African countries.PLoS medicine · 2012Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
Abstract
Informed consent has historically been a cornerstone to ensuring autonomy during HIV testing. However, recent changes to global guidance on HIV testing have led to substantial debate on what policy provisions are necessary to ensure that consent remains meaningful in the context of testing. Despite disproportionate rates of testing during pregnancy, pregnant women's perspectives on the HIV testing process are underrepresented in the testing discourse. This study explores women's experiences with HIV testing and the consent process in a public antenatal clinic in South Africa. Qualitative interviews with 25 women were conducted at the clinic at either an antenatal visit or an infant immunization visit that followed HIV testing. Interviews were transcribed, translated, and coded for analysis. Women were categorized into one of the three groups based on their perceptions of choice in consenting for an HIV test. Matrices were used to allow for cross-category and cross-case comparison. Half of the women described having a clear choice in their decision to test. Others were less clear about their choice. Some women felt they had no choice in testing for HIV. None of the women stated that they were tested without having signed a consent form. We found that half of the women's narratives illustrated direct and indirect ways in which providers coerced them into taking an HIV test while receiving antenatal care. As the new guidance on HIV testing is implemented in different settings, it is critical to monitor women's testing experiences to ensure that a woman's right to make an informed, voluntary choice is not violated. Furthermore, models of testing that allow us to meet broader public health goals while simultaneously respecting women's autonomy are needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.