Trial reportQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2010
The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome.
Trial report in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature.Ontario health technology assessment series · 2012Pooled it
- How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis.Journal of patient-reported outcomes · 2018Review
- Individualized quality of life of severely affected multiple sclerosis patients: practicability and value in comparison with standard inventories.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016Article
- Cognitive strategies and quality of life of patients with high-grade glioma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2015Article
- Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: guidance for researchers.Pilot and feasibility studies · 2015Review
- Describing qualitative research undertaken with randomised controlled trials in grant proposals: a documentary analysis.BMC medical research methodology · 2014Article
- Mixed methods research in the development and evaluation of complex interventions in palliative and end-of-life care: report on the MORECare consensus exercise.Journal of palliative medicine · 2013Article
- What can qualitative research do for randomised controlled trials? A systematic mapping review.BMJ open · 2013Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo report the experience of using the SEIQoL-DW for the measurement of quality of life with patients with advanced COPD and consider its feasibility, acceptability and appropriateness for a Phase III randomised controlled trial (RCT).
methodsThe SEIQoL-DW was administered according to its instructions within a Phase II RCT 3-5 times per patient, across 13 patients and the process audio-recorded. Quantitative and qualitative criteria were used to assess feasibility, acceptability and appropriateness. Qualitative analysis of the transcripts and fieldwork notes was conducted using Framework Analysis.
resultsThe SEIQoL-DW steps (of identifying five quality of life cues, rating their functioning and importance) were completed at 48/51 interviews. However, some respondents were overwhelmed by the scripted introduction, experienced difficulty with cue identification, and focused only on certain types of cues (Step 1); some had difficulty interpreting and rating the concept of Step 2; and some had difficulty interpreting 'importance' and manipulating the SEIQoL-DW disc (Step 3).
conclusionsPatients with advanced COPD were able to complete the SEIQoL-DW but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. Suggestions for the development of the SEIQoL-DW and future feasibility studies are given.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.