ArticleArchives of pediatrics & adolescent medicine2010
Palliative care of children with brain tumors: a parental perspective.
Article in Archives of pediatrics & adolescent medicine, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 5 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life.Palliative medicine · 2020Pooled it
- Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.Palliative medicine · 2020Pooled it
- Pooled it
- The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review.Palliative medicine · 2017Pooled it
- Palliative Care as a Standard of Care in Pediatric Oncology.Pediatric blood & cancer · 2015Pooled it
- Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- Illness-related communication experiences of mothers of children with cancer during the end of life.BMC palliative care · 2025Article
- The Psychological Experience of Caregivers of Children With Neuroblastoma Undergoing Naxitamab Treatment: A Qualitative Study in China.Child: care, health and development · 2025Article
- Attitudes and Experiences of Community Palliative Care Nurses Regarding Pediatric Home-Based End-of-Life Care: A Statewide Survey.Journal of palliative care · 2025Article
- Sub specialization and centralization of pediatric neuro-oncology services: a strategy to improve outcomes in low-resource settings.Frontiers in oncology · 2025Review
- Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review.International journal of nursing sciences · 2024Review
- The Power of a Belief System: A Systematic Qualitative Synthesis of Spiritual Care for Patients with Brain Tumors.Journal of clinical medicine · 2024Review
- Palliative care for children with central nervous system tumors: results of a Spanish multicenter study.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2024Article
- The meaning of dying and death for children, their carers, and families: a scoping review.BMC palliative care · 2023Article
- Coping in the role as next of kin of a person with a brain tumour: a qualitative metasynthesis.BMJ open · 2022Article
- Defining and timing of palliative opportunities in children with central nervous system tumors.Neuro-oncology practice · 2021Article
- Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration.Qualitative health research · 2019Review
- Palliative Care for Children with Central Nervous System Malignancies.Bioengineering (Basel, Switzerland) · 2018Review
- Existential distress among caregivers of patients with brain tumors: a review of the literature.Neuro-oncology practice · 2016Review
- Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life.Journal of pain and symptom management · 2016Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore the end-of-life experience of children with brain tumors and their families.
designQualitative analysis of focus group interviews.
settingChildren's Hospital, London Health Sciences Center.
participantsTwenty-five parents of 17 children who had died of brain tumors.
interventionParents participated in 3 semistructured focus group interviews.
main outcome measuresThemes identified through thematic analysis of interview transcripts.
resultsQualitative analysis identified 3 primary themes. (1) Parents described the dying trajectory of their child as characterized by progressive neurologic deterioration, with the loss of the ability to communicate as a turning point. Parental coping mechanisms included striving to maintain normality and finding spiritual strength through maintaining hope and in the resilience of their child. (2) Parental struggles during this phase included balancing competing responsibilities and speaking with their child about death. (3) Barriers to achieving a home death included suboptimal symptom management, financial and practical hardships, and inadequate community support. A fourth, secondary theme concerned the therapeutic benefits of the interview.
conclusionThe neurologic deterioration that characterizes the dying trajectory of children with brain tumors may create significant challenges for health care professionals and the children's parents, supporting the need for increased awareness of the distinct issues in the palliative care of children with brain tumors and for early anticipatory guidance provided for families.
Indexed as
Identifiers
20194254What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.