ArticleJournal of the American Medical Informatics Association : JAMIA
Improving personal health records for patient-centered care.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
38 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Personal Health Records: A Systematic Literature Review.Journal of medical Internet research · 2017Pooled it
- Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies.BMC medical informatics and decision making · 2016Pooled it
- Patient engagement in the inpatient setting: a systematic review.Journal of the American Medical Informatics Association : JAMIAPooled it
- Examining the existing usage gap of electronic health records in the United States: A study of National Health Survey.SSM - population health · 2024Article
- A Technology Acceptance Model for Deploying Masks to Combat the COVID-19 Pandemic in Taiwan (My Health Bank): Web-Based Cross-sectional Survey Study.Journal of medical Internet research · 2021Article
- An Iterative and Collaborative End-to-End Methodology Applied to Digital Mental Health.Frontiers in psychiatry · 2021Article
- Patients' Perceptions of Portal Use Across Care Settings: Qualitative Study.Journal of medical Internet research · 2019Article
- Investigating data accessibility of personal health apps.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Simulated Clinical Encounters Using Patient-Operated mHealth: Experimental Study to Investigate Patient-Provider Communication.JMIR mHealth and uHealth · 2018Article
- Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Focus Section Health IT Usability: Applying a Task-Technology Fit Model to Adapt an Electronic Patient Portal for Patient Work.Applied clinical informatics · 2018Article
- The Rules of Engagement: Perspectives on Secure Messaging From Experienced Ambulatory Patient Portal Users.JMIR medical informatics · 2017Article
- Personal health records in the Netherlands: potential user preferences quantified by a discrete choice experiment.Journal of the American Medical Informatics Association : JAMIA · 2017Article
- Importance-Performance Analysis of Personal Health Records in Taiwan: A Web-Based Survey.Journal of medical Internet research · 2017Article
- Support for Sustainable Use of Personal Health Records: Understanding the Needs of Users as a First Step Towards Patient-Driven Mobile Health.JMIR mHealth and uHealth · 2017Article
- Supporting Client and Family Engagement in Care Through the Planning and Implementation of an Online Consumer Health Portal.Journal of patient experience · 2016Article
- Which Users Should Be the Focus of Mobile Personal Health Records? Analysis of User Characteristics Influencing Usage of a Tethered Mobile Personal Health Record.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2016Article
- Interactive tools for inpatient medication tracking: a multi-phase study with cardiothoracic surgery patients.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Patient Portals and Patient Engagement: A State of the Science Review.Journal of medical Internet research · 2015Review
- The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.Journal of medical Internet research · 2015Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo assess the patient-centeredness of personal health records (PHR) and offer recommendations for best practice guidelines.
designSemi-structured interviews were conducted in seven large early PHR adopter organizations in 2007. Organizations were purposively selected to represent a variety of US settings, including medium and large hospitals, ambulatory care facilities, insurers and health plans, government departments, and commercial sectors. MEASUREMENTS: Patient-centeredness was assessed against a framework of care that includes: (1) respect for patient values, preferences, and expressed needs; (2) information and education; (3) access to care; (4) emotional support to relieve fear and anxiety; (5) involvement of family and friends; (6) continuity and secure transition between healthcare providers; (7) physical comfort; (8) coordination of care. Within this framework we used evidence for patient preferences (where it exists) to compare existing PHR policies, and propose a best practice model.
resultsMost organizations enable many patient-centered functions such as data access for proxies and minors. No organization allows patient views of clinical progress notes, and turnaround times for PHR reporting of normal laboratory results can be up to 7 days.
conclusionFindings suggest patient-centeredness for personal health records can be improved, and recommendations are made for best practice guidelines.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.