ArticleCancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology2010
Coherence and completeness of population-based family cancer reports.
Article in Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- ACG clinical guideline: Genetic testing and management of hereditary gastrointestinal cancer syndromes.The American journal of gastroenterology · 2015Guideline
- Differences in Cascade Genetic Testing Among Families With Hereditary Cancer Risk.JAMA network open · 2026Article
- Evaluation of disparities in perceived healthcare discrimination amongWomen & health · 2023Article
- Unawareness of breast cancer family history among African women.The Pan African medical journal · 2023Article
- Uptake of genetic testing for germline BRCA1/2 pathogenic variants in a predominantly Hispanic population.Cancer genetics · 2019Article
- Structural and Contextual Patterns in Family Health History Knowledge among African American Adults: A Mixed-Methods Social Network Analysis Study.Journal of social structure : JOSS · 2019Article
- What characterizes cancer family history collection tools? A critical literature review.Current oncology (Toronto, Ont.) · 2018Review
- Automatic Genetic Risk Assessment Calculation Using Breast Cancer Family History Data from the EHR compared to Self-Report.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- A model for patient-direct screening and referral for familial cancer risk.Familial cancer · 2016Article
- Health Care Segregation, Physician Recommendation, and Racial Disparities in BRCA1/2 Testing Among Women With Breast Cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2016Article
- The context of collecting family health history: examining definitions of family and family communication about health among African American women.Journal of health communication · 2015Article
- Family health information sharing among older adults: reaching more family members.Journal of community genetics · 2015Article
- An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.Journal of genetic counseling · 2014Article
- Family history of breast and ovarian cancer and triple negative subtype in hispanic/latina women.SpringerPlus · 2014Article
- "You don't have to keep everything on paper": African American women's use of family health history tools.Journal of community genetics · 2013Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundAlthough family history of cancer is widely ascertained in research and clinical care, little is known about assessment methods, accuracy, or other quality measures. Given its widespread use in cancer screening and surveillance, better information is needed about the clarity and accuracy of family history information reported in the general population.
methodsThis telephone survey in Connecticut examined coherence and completeness of reports from 1,019 respondents about 20,504 biological relatives.
resultsOf 2,657 cancer reports, 97.7% were judged consistent with malignancy (versus benign or indeterminate conditions); 79% were site specific, 10.1% had unspecified cancer sites, and 8.6% had "ill-defined" sites. Only 6.1% of relatives had unknown histories. Unknown histories and ambiguous sites were significantly higher for second-degree relatives. The adjusted percentage of first-degree relative reports with ambiguous sites increased with decreasing education and African-American race of survey respondents, and with deceased vital status of relatives. Ambiguous second-degree relative reports were also associated with deceased vital status and with male gender of respondents.
conclusionsThese findings suggest that family history of cancer reports from the general population are generally complete and coherent. IMPACT: Strategies are needed to improve site specificity and thus maximize the utility of such information in primary care settings.
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