ArticlePediatric rheumatology online journal2010
High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis.
Article in Pediatric rheumatology online journal, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
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Who cites it
60 citing papers in PubMed, 2 syntheses or guidelines pooled it, 120 citations in OpenAlex.
- Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components.BMC health services research · 2021Pooled it
- Pooled it
- [Transition: between recommendations and real-world care : Results from the InfoTrans project].Zeitschrift fur Rheumatologie · 2026Article
- Success of transition to adult care in patients with pediatric-onset chronic liver disease.Journal of pediatric gastroenterology and nutrition · 2026Observational
- A home base for young adults: evidence that a primary care-embedded multidisciplinary rheumatology transition clinic improved care utilization and engagement.Health care transitions · 2026Article
- The unique challenges of childhood-onset systemic lupus erythematosus and lupus nephritis patients: a proposed framework for an individualized transitional care plan.Pediatric nephrology (Berlin, Germany) · 2025Review
- A Virtual Self-Management Intervention for Adolescents With Juvenile Idiopathic Arthritis: Protocol for the VISTA-JIA Randomized Controlled Trial.JMIR research protocols · 2025Article
- Transitioning from pediatric to adult-oriented healthcare in rheumatology: the pediatric side of the coin.Rheumatology (Oxford, England) · 2025Article
- What have we learned from long-term studies in juvenile idiopathic arthritis? - Prediction, classification, transition.Pediatric rheumatology online journal · 2025Review
- Challenges in the transition of care for rare connective tissue diseases: results from the 2023 ERN ReCONNET Transition of Care Task Force survey.Rheumatology advances in practice · 2025Article
- Transformation of juvenile idiopathic arthritis in adult-oriented rheumatology care.Turkish journal of medical sciences · 2025Article
- Enabling good transition processes from child to adult medical care: a study protocol.Frontiers in health services · 2025Article
- Pediatric to adult rheumatology transition: Success rates, influencing factors, and evolving diagnoses and treatments.Archives of rheumatology · 2024Article
- Transition to Adulthood through Coaching and Empowerment in Rheumatology (TRACER): A feasibility study protocol.PloS one · 2024Article
- A meta-analysis and systematic review of the use of transition tools for patients transitioning from paediatric to adult rheumatology services.Rheumatology advances in practice · 2024Review
- Implementation of an automated transition readiness assessment in a pediatric rheumatology clinic.Frontiers in pediatrics · 2024Article
- Transition readiness among finnish adolescents with juvenile idiopathic arthritis.Pediatric rheumatology online journal · 2023Article
- A survey of Canadian adult rheumatologists' knowledge, comfort level, and barriers in assessing psychosocial needs of young adults with rheumatic diseases.Rheumatology international · 2023Article
- Continuing specialist care into adulthood in young people with juvenile idiopathic arthritis: a retrospective cohort study using electronic health records in England.Rheumatology (Oxford, England) · 2023Article
- Growing up with chronic pain: a systematic review of the evidence in transitional care for young people with chronic pain.Rheumatology advances in practice · 2023Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis study aimed to describe the proportion of patients with juvenile idiopathic arthritis (JIA) who had experienced an unsuccessful transfer from a pediatric rheumatology team to an adult rheumatologist and to compare the characteristics of those who achieved successful transfer to those who did not.
methodsWe conducted a systematic chart review of all patients with JIA who attended their final Montreal Children's Hospital JIA clinic appointment between 1992 and 2005. We tracked these patients for the two years after transfer to an adult rheumatologist. We then compared characteristics of patients with successful and unsuccessful transfers of care. Variables pertaining to disease characteristics, disease severity and psychosocial factors were examined. Univariate analyses were performed to determine if any single factor was associated with the outcome of unsuccessful transfer of care.
results52% of patients fulfilled our criteria for unsuccessful transfer. Of the variables tested, an active joint count (AJC) of zero at last visit was associated with the outcome of unsuccessful transfer (OR = 2.67 (CI 1.16-6.16; p = 0.0199)).
conclusionsDespite the presence of a coordinated process of transfer from pediatric to adult health care for the majority of the patients in this study, there was a high rate of unsuccessful transfer and/or sustained follow up which is disheartening. We found that patients with less active disease at the time of transfer, as indicated by a lower AJC, were more likely to be lost to follow up. Recent literature suggests that even in the least severe categories of JIA, 50% of patients persist with active disease into adulthood. Thus educating all JIA patients about the possibility of disease flare in adulthood may improve their adherence to recommendations for sustained follow-up in the adult milieu. This may lead to improvement of longitudinal outcomes for all JIA patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.