Trial reportQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2010
Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients.
Trial report in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 50 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
50 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The use of patient-reported outcome measures to improve patient-related outcomes - a systematic review.Health and quality of life outcomes · 2024Pooled it
- Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice.The Cochrane database of systematic reviews · 2021Pooled it
- A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting.BMC health services research · 2013Pooled it
- A thematic analysis of quality of life in lung transplant: the existing evidence and implications for future directions.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2013Pooled it
- A randomized controlled trial of shared decision-making treatment planning process to enhance shared decision-making in patients with MBC.Breast cancer research and treatment · 2024Trial
- Impact of a drug-related patient-reported outcome measure on drug-related problem identification, physicians' acceptance, and clinical and quality of life outcomes: a randomized controlled trial.International journal of clinical pharmacy · 2022Trial
- Computerized Quality of Life Assessment: A Randomized Experiment to Determine the Impact of Individualized Feedback on Assessment Experience.Journal of medical Internet research · 2019Trial
- Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2016Trial
- Communicating patient-reported outcome scores using graphic formats: results from a mixed-methods evaluation.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Trial
- When using patient-reported outcomes in clinical practice, the measure matters: a randomized controlled trial.Journal of oncology practice · 2014Trial
- The construct validity of the health utilities index mark 3 in assessing health status in lung transplantation.Health and quality of life outcomes · 2010Trial
- Patient-reported Outcome Measures in Solid Organ Transplant Recipients: Current use, Challenges, and Recommendations for Future use.Transplantation · 2026Review
- Performance indicators for organ donation and transplantation programmes in Europe: modified Delphi consensus study.The British journal of surgery · 2025Article
- Patient-reported outcome measures for paediatric gender-affirming care: A systematic review.Paediatrics & child health · 2024Article
- Real-World Use of Electronic Patient-Reported Outcome (ePRO) Tools Integrated in the Electronic Medical Record During Radiation Therapy for Head and Neck Cancer: Feasibility Study.The Permanente journal · 2023Article
- Feasibility of PROMIS using computerized adaptive testing during inpatient rehabilitation.Journal of patient-reported outcomes · 2023Article
- Palliative Care Early in the Care Continuum among Patients with Serious Respiratory Illness: An Official ATS/AAHPM/HPNA/SWHPN Policy Statement.American journal of respiratory and critical care medicine · 2022Article
- A PRO-cision medicine intervention to personalize cancer care using patient-reported outcomes: intervention development and feasibility-testing.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Evaluating the implementation and impact of navigator-supported remote symptom monitoring and management: a protocol for a hybrid type 2 clinical trial.BMC health services research · 2022Article
- A framework to make PROMs relevant to patients: qualitative study of communication preferences of PROMs.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis randomized controlled clinical trial examined the usefulness of including an assessment of health-related quality of life (HRQL) in the routine clinical care of lung-transplant patients. We hypothesized that the inclusion of HRQL in routine clinical care would improve patient-clinician communication, affect clinical management, and improve patients' HRQL.
methodsAt the outpatient clinic, University of Alberta Hospital, patients were randomly assigned to intervention (completion of Health Utilities Index Mark 2 (HUI2) and Mark 3 (HUI3) on touch-screen computer with feedback to clinicians) and control group (completion of HUI2 and HUI3 on touch-screen computer without feedback). Feedback involved a graphical representation included in patients' chart. All clinical encounters were audio-taped. Changes in clinical management (medication changes, number of referrals and test ordered) were summed to produce an overall management composite. At the end of every visit, patients completed the EQ-5D.
resultsTwo hundred and thirteen patients were randomized (108 to intervention and 105 to control groups). There were statistically significant differences between the groups in mean number of issues discussed per encounter (P = 0.003; Cohen's d = 0.03) and mean management composite score (P = 0.001; Cohen's d = 0.41). EQ-5D index was not statistically significant different between the groups (P = 0.48).
conclusionsWe detected very small effects on patient-clinician communication and small effects on patient management, without detecting improvement in patient outcome.
Indexed as
Identifiers
20146009What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.