Evidence map›Paper›PMID 20108258›Full record

ArticleResearch in nursing & health2010

Parental perceptions of the outcome and meaning of normalization.

Kathleen A Knafl, Blair G Darney, Agatha M Gallo, Denise B Angst

Open access · greenAbstract read
In one paragraph

Article in Research in nursing & health, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
4.4field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 68 citations in OpenAlex.

  1. Article
  2. Article
  3. 'Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition.Journal of child health care : for professionals working with children in the hospital and community · 2024
    Article
  4. Article
  5. Article
  6. A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.International journal of qualitative studies on health and well-being · 2021
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 4 institutions in 1 country.

Kathleen A KnaflSchool of Nursing, University of North Carolina at Chapel Hill, 2007 Carrington Hall - CB 7460, Chapel Hill, NC 27599, USA.
Blair G Darney
Agatha M Gallo
Denise B Angst
Advocate Center for Pediatric Research · USMarymount University · USUniversity of North Carolina at Chapel Hill · USUniversity of Washington · US

Funding

Parents'Interpretation and Use of Genetic InformationR01HG002036 · NHGRI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI GALLO, AGATHA M. · 2001 to 2004
$1.6M
Assessing Family Management of Childhood Chronic IllnessR01NR008048 · NINR · YALE UNIVERSITY · PI GREY, MARGARET · 2003 to 2005
$1.1M
NHGRI NIH HHS R01 HG002036NICHD NIH HHS R01HG/HD02036NINR NIH HHS R01 NR008048
6 · The paper itself

Abstract

The purpose of this secondary analysis was to identify the meaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life.

Indexed as

Adaptation, PsychologicalAttitude to HealthGenetic Diseases, InbornAdolescentAdultChildChild, PreschoolChronic DiseaseCost of IllnessFemaleHealthHumansLife Change EventsMaleMidwestern United StatesNursing Methodology Research

Identifiers

PMID20108258
PMCPMC2943872
OpenAlexW1993905008

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.