ArticleResearch in gerontological nursing2009
Research participation by older adults at end of life: barriers and solutions.
Article in Research in gerontological nursing, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed.
- Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.Pediatrics · 2021Trial
- Recruiting hospitalized Mexican American elder adults and caregivers: challenges and strategies.Research in gerontological nursing · 2013Trial
- Why are older adults living with the complexity of multiple long-term conditions, frailty and a recent deterioration in health under-served by research? A narrative synthesis review of the literature.Journal of frailty, sarcopenia and falls · 2023Review
- Recruitment of family caregivers of persons with dementia: Lessons learned from a pilot randomized controlled trial.Frontiers in pain research (Lausanne, Switzerland) · 2023Article
- The Effect of Digital Literacy on Participation in Social Media Clinical Trials in Cancer: Tailoring an Informed Consent Process.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2022Article
- Challenges and facilitators in delivering optimal care at the End of Life for older patients: a scoping review on the clinicians' perspective.Aging clinical and experimental research · 2021Article
- How to deal with the consent of adults with cognitive impairment involved in European geriatric living labs?Philosophy, ethics, and humanities in medicine : PEHM · 2021Review
- How do inner and outer settings affect implementation of a community-based innovation for older adults with a serious illness: a qualitative study.BMC health services research · 2021Article
- Ethical considerations for HIV cure-related research at the end of life.BMC medical ethics · 2018Article
- Article
- Conducting Biobehavioral Research in Patients With Advanced Cancer: Recruitment Challenges and Solutions.Biological research for nursing · 2017Article
- Feasibility, acceptability, and tolerability of RGN107 in the palliative wound care management of chronic wound symptoms.Journal of wound care · 2017Article
- An examination of adherence to pain medication plans in older cancer patients in hospice care.Journal of pain and symptom management · 2013Article
- The relationships among pain, nonpain symptoms, and quality of life measures in older adults with cancer receiving hospice care.Pain medicine (Malden, Mass.) · 2011Article
- Implementing evidence-based practices: considerations for the hospice setting.The American journal of hospice & palliative care · 2010Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
The purpose of this article is to elaborate on barriers to research participation by older adults at end of life. We focus on the hospice setting and classify barriers to research participation into six domains: societal attitudes toward death, research procedures, health care organizations, agency staff, patients' families and caregivers, and patient characteristics. We characterize particular participation issues, uncertainties in participation for individuals with advanced illness, and infringements on patient self-determination, as well as potential solutions to these research challenges. Our observation of the complex palliative context includes the realization that a singular change will not have large enough impact on participation. We conclude that, along with the responsibility to expand the research base addressing the needs of dying individuals, there is also a need to understand the challenges of implementing research projects with older adults at end of life.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.