ArticleAmerican journal of public health2010
Privacy versus public health: the impact of current confidentiality rules.
Article in American journal of public health, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Early Stage of the COVID-19 Outbreak in Tunisia, France, and Germany: A Systematic Mapping Review of the Different National Strategies.International journal of environmental research and public health · 2021Pooled it
- A systematic review of barriers to data sharing in public health.BMC public health · 2014Pooled it
- Assessing the Evolution and Influence of Medical Open Databases on Biomedical Research and Health Care Innovation: A 25-Year Perspective With a Focus on Privacy and Privacy-Enhancing Technologies.Journal of medical Internet research · 2026Article
- Large language models generating synthetic clinical datasets: a feasibility and comparative analysis with real-world perioperative data.Frontiers in artificial intelligence · 2025Article
- Leveraging data to support health equity in an integrated delivery and finance system.Learning health systems · 2024Article
- A Novel Framework to Address the Complexities of Housing Insecurity and Its Associated Health Outcomes and Inequities: "Give, Partner, Invest".International journal of environmental research and public health · 2023Article
- Identifying and prioritizing benefits and risks of using privacy-enhancing software through participatory design: a nominal group technique study with patients living with chronic conditions.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study.Journal of medical Internet research · 2021Article
- Privacy concerns can explain unwillingness to download and use contact tracing apps when COVID-19 concerns are high.Computers in human behavior · 2021Article
- COVID-19: Putting the General Data Protection Regulation to the Test.JMIR public health and surveillance · 2020Article
- Missed opportunities to advance knowledge on traffic safety: Accessibility of driver licensing and crash data for scientific research.Accident; analysis and prevention · 2020Article
- Risk and protective factors of identity theft victimization in the United States.Preventive medicine reports · 2020Article
- Balancing Personal Privacy and Public Safety During COVID-19: The Case of South Korea.IEEE access : practical innovations, open solutions · 2020Article
- Article
- Decision-making under uncertainty in environmental health policy: new approaches.Environmental health and preventive medicine · 2019Article
- Impact of linkage quality on inferences drawn from analyses using data with high rates of linkage errors in rural Tanzania.BMC medical research methodology · 2018Article
- Private collection: high correlation of sample collection and patient admission date in clinical microbiological testing complicates sharing of phylodynamic metadata.Virus evolution · 2018Article
- Addressing data privacy in matched studies via virtual pooling.BMC medical research methodology · 2017Article
- Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention.Journal of geographical systems · 2017Article
- Confidentiality considerations for use of social-spatial data on the social determinants of health: Sexual and reproductive health case study.Social science & medicine (1982) · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
Public health research and practice often have been facilitated through the evaluation and study of population-based data collected by local, state, and federal governments. However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these valuable data. We believe that these restrictions, and the research impeded or precluded by their implementation and enforcement, have had a significant negative impact on important public health research. Members of the public health community should challenge these policies through their professional societies and by lobbying legislators and health officials to advocate for changes that establish a more appropriate balance between privacy concerns and the protection of public health.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.