ArticleHealth and quality of life outcomes2009
Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R.
Article in Health and quality of life outcomes, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Health-related quality of life and associated factors in children with bronchiectasis: A systematic review.European journal of pediatrics · 2026Pooled it
- Pooled it
- Interventions for promoting physical activity in people with cystic fibrosis.The Cochrane database of systematic reviews · 2013Pooled it
- A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF.BMC pulmonary medicine · 2021Trial
- Article
- Review
- Parents' Knowledge of the Impact of Cystic Fibrosis on the Quality of Life of Children and Adolescents Suffering from This Disease as an Element of Patient Safety.Journal of clinical medicine · 2023Article
- Psychometric Properties of the Persian Version of Cystic Fibrosis Questionnaire: Revised in Children with Cystic Fibrosis.International journal of preventive medicine · 2023Article
- TRACK-CF prospective cohort study: Understanding early cystic fibrosis lung disease.Frontiers in medicine · 2022Article
- Acceptability of patient reported outcome measures (PROMs) in a cystic fibrosis data registry.BMJ open respiratory research · 2021Article
- Improvements in frailty contribute to substantial improvements in quality of life after lung transplantation in patients with cystic fibrosis.Pediatric pulmonology · 2020Article
- Article
- Abdominal symptoms in cystic fibrosis and their relation to genotype, history, clinical and laboratory findings.PloS one · 2017Article
- Gender Differences in Clinical Presentations of Cystic Fibrosis Patients in Azeri Turkish Population.Tuberculosis and respiratory diseases · 2016Article
- Chest CT abnormalities and quality of life: relationship in adult cystic fibrosis.Annals of translational medicine · 2016Article
- Validation of a Quality of Life Questionnaire for Bronchiectasis: psychometric analyses of the Spanish QOL-B-V3.0.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Article
- Reliability and validity of the Cystic Fibrosis Questionnaire-Revised for children and parents in Turkey: cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2013Article
- Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2012Article
- Erratum to: Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national, US sample.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2012Article
- Evaluation of the quality of life and associated factors of a group of children and adolescents with cystic fibrosis in the northern region of Portugal: a cross-sectional pilot study.Porto biomedical journalArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis study evaluates the psychometric properties of the Child and Parent versions of the German CFQ-R (Cystic Fibrosis Questionnaire Revised), a disease-specific measure of Health-Related Quality of Life (HRQoL) in children with cystic fibrosis (CF). Self-Rating is combined with proxy-rating by parents in the use of the questionnaire.
methods136 children with CF (6 - 13 years) and their parents were recruited to evaluate internal consistency (Cronbach's alpha) and validity, 20 children and parents to examine reproducibility (ICC).
resultsCronbach's alpha is high in all but two dimensions of the Child version (alpha = 0.23-0.77) and for all dimensions of the Parent version (alpha = 0.69-0.89). For both questionnaires, reproducibility is moderate to high (ICC = 0.50-0.94). Factor analysis shows loadings of >0.4 in the majority of items. Higher HRQoL is reported by children with mild disease compared to those with moderate/severe disease and by boys compared to girls. Convergence between self-rating and proxy-rating depends on the dimension.
conclusionThe German CFQ-R, Child and Parent versions, are reliable and valid measures of HRQoL. They should be administered in combination as both, child and parent, provide important information. The measure offers a new patient-reported outcome for clinical purposes as well as for national and international studies in schoolchildren.
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