ArticleHealth expectations : an international journal of public participation in health care and health policy2010
Communicating the results of research: how do participants of a cardiac rehabilitation RCT prefer to be informed?
Article in Health expectations : an international journal of public participation in health care and health policy, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Current global practice and implications for future research on disseminating health research results to study participants: A systematic review.PLoS medicine · 2025Pooled it
- Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2012Guideline
- Testing approaches to sharing trial results with participants: The Show RESPECT cluster randomised, factorial, mixed methods trial.PLoS medicine · 2021Trial
- Participants' preference for type of leaflet used to feed back the results of a randomised trial: a survey.Trials · 2010Trial
- Article
- The relative importance of information items and preferred mode of delivery when disseminating results from trials to participants: A mixed-methods study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Providing trial results to participants in phase III pragmatic effectiveness RCTs: a scoping review.Trials · 2021Article
- Participants' perspectives and preferences on clinical trial result dissemination: The TRUST Thyroid Trial experience.HRB open research · 2018Article
- Allocation of Resources to Communication of Research Result Summaries.Journal of empirical research on human research ethics : JERHRE · 2016Article
- Patient involvement in clinical research: why, when, and how.Patient preference and adherence · 2016Review
- "Maybe they have found something new" participants' views on returning cohort psychosocial survey results.Health expectations : an international journal of public participation in health care and health policy · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo determine the preferred means by which participants in a study of cardiac rehabilitation wish to be informed of the study's results.
designPostal questionnaire survey of participants in a randomized controlled trial.
settingCornwall, southwest England.
participantsPatients recruited to the Cornwall Heart Attack Rehabilitation Management Study (CHARMS).
methodParticipants recruited to CHARMS who were alive 3 years and 9 months after the trial was completed were contacted by letter and invited to return a reply slip with four short questions indicating how they would prefer to be informed about the published results of the study.
resultsIn March 2008, 191/230 participants originally recruited to CHARMS were still alive. General practitioners deemed 166/191 (88%) survivors medically appropriate to be contacted through a postal survey, and 154/166 (93%) participants responded to the invitation to participate in the follow-up survey. 86% (143/166) of participants indicated that they wished to be informed about the results: 115 (80%) of these elected to receive information by letter and 25 (18%) of these preferred to attend a meeting. Men older than 65 years predominated in this latter group. Women respondents preferred to receive the study results by letter; none preferred communication by email or the web.
conclusionSurvivors of acute myocardial infarction who participated in a RCT of cardiac rehabilitation wanted to receive a summary of the aggregate study results. Participants had preferences regarding how they would wish to be informed about the results of the study. Most participants preferred to be informed by letter or email, but some preferred the interaction of a group or a meeting.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.