ArticleJournal of genetic counseling2010
Women's perceptions of the personal and family impact of genetic cancer risk assessment: focus group findings.
Article in Journal of genetic counseling, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 40 citations in OpenAlex.
- Assessing Psychological Morbidity in Cancer-UnaffectedCurrent oncology (Toronto, Ont.) · 2023Pooled it
- Psychological aspects, risk and protective factors related to BRCA genetic testing: a review of the literature.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Pooled it
- Psychological Distress, Anxiety, and Depression of Cancer-Affected BRCA1/2 Mutation Carriers: a Systematic Review.Journal of genetic counseling · 2016Pooled it
- Factors associated with psychological distress during genetic counseling in high-risk women with breast cancer in Turkey.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Article
- How does genetic testing influence anxiety, depression, and quality of life? A hereditary breast and ovarian cancer syndrome suspects trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Assessing Stakeholder Perceptions of the Utility of Genetic Information for the Clinical Care of Mental Health Disorders: We Have a Will but Need to See the Way.Administration and policy in mental health · 2021Article
- Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations.Family process · 2020Article
- Four Actionable Bottlenecks and Potential Solutions to Translating Psychiatric Genetics Research: An Expert Review.Public health genomics · 2020Review
- Cancer-related worry and risk perception in Brazilian individuals seeking genetic counseling for hereditary breast cancer.Genetics and molecular biology · 2020Article
- Impact of Panel Gene Testing for Hereditary Breast and Ovarian Cancer on Patients.Journal of genetic counseling · 2017Article
- Lynch Syndrome Limbo: Patient Understanding of Variants of Uncertain Significance.Journal of genetic counseling · 2017Article
- Emotional impact on the results of BRCA1 and BRCA2 genetic test: an observational retrospective study.Hereditary cancer in clinical practice · 2017Article
- Experience of Norwegian Female BRCA1 and BRCA2 Mutation-Carrying Participants in Educational Support Groups: a Qualitative Study.Journal of genetic counseling · 2016Article
- Confidentiality & the Risk of Genetic Discrimination: What Surgeons Need to Know.Surgical oncology clinics of North America · 2015Review
- Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Specific psychosocial issues of individuals undergoing genetic counseling for cancer - a literature review.Journal of genetic counseling · 2014Review
- Talking to children about maternal BRCA1/2 genetic test results: a qualitative study of parental perceptions and advice.Journal of genetic counseling · 2013Article
- Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.Journal of community genetics · 2013Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Women with a personal or family history of breast or ovarian cancer are increasingly presenting for genetic cancer risk assessment (GCRA). To explore the personal and family impact of GCRA, four focus groups were conducted of women seen for risk assessment. Participants were 22 primarily non-Latina White women with a personal or family history of breast or ovarian cancer. Analysis of the data identified new themes related to balancing time to assimilate risk information with the need to make timely healthcare decisions, physicians' lack of sufficient genetic knowledge, and concern for daughters regardless of the daughters' age. Other themes related to protecting others, knowledge as empowerment, reassessing personal attribution of cancer risk, managing uncertainty, reappraising body image, and experiencing divergent family responses to communication of cancer risk and healthcare decisions. Understanding the personal and family impact of GCRA may enable genetics professionals to tailor their counseling efforts to better meet the needs of these women. Additional research is needed to extend these findings and identify interventions to support positive outcomes of GCRA.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.