ArticleAmerican journal of public health2009
Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions.
Article in American journal of public health, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT00006421 (Breast Imaging Screening Studies in Women at High Genetic Risk of Breast Cancer), which is not on this map. Cited by 90 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Breast Imaging Screening Studies in Women at High Genetic Risk of Breast Cancer: Annual Follow-up Study
Who cites it
90 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Gender differences in self-reported family history of cancer: A review and secondary data analysis.Cancer medicine · 2020Pooled it
- Effectiveness of theCirculation · 2023Trial
- Communication Among Melanoma Family Members.Journal of health communication · 2017Trial
- Protocol for a randomized controlled trial testing the impact of feedback on familial risk of chronic diseases on family-level intentions to participate in preventive lifestyle behaviors.BMC public health · 2016Trial
- Family Ties: The Role of Family Context in Family Health History Communication About Cancer.Journal of health communication · 2016Trial
- Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr).Preventive medicine · 2015Trial
- The KinFact intervention - a randomized controlled trial to increase family communication about cancer history.Journal of women's health (2002) · 2014Trial
- Effects of providing personalized feedback of child's obesity risk on mothers' food choices using a virtual reality buffet.International journal of obesity (2005) · 2013Trial
- Prevalence and healthcare actions of women in a large health system with a family history meeting the 2005 USPSTF recommendation for BRCA genetic counseling referral.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2013Trial
- Proactive recruitment of cancer patients' social networks into a smoking cessation trial.Contemporary clinical trials · 2011Trial
- What Makes Families SHARE: The Family Communication Environments of Disseminators and Non-Disseminators of Family Cancer History.Public health genomics · 2026Article
- Article
- Survivors' Responses to an Online Intervention to Promote Discussions of Cancer Genetic Risk with Blood Relatives.Public health genomics · 2026Article
- The families SHARE project: novel insights on recruiting and engaging Black men in a community-based genomic education program.BMC public health · 2025Article
- Familial communication and cascade testing following elective genomic testing.Journal of genetic counseling · 2025Article
- Health-related roles of older generations in families with inherited genetic conditions: a scoping review.Journal of community genetics · 2024Article
- Reclassification of Variants Following Renal Genetics Testing: Uncommon Yet Impactful for Diagnosis and Management.Kidney international reports · 2024Article
- Direct notification by health professionals of relatives at-risk of genetic conditions (with patient consent): views of the Australian public.European journal of human genetics : EJHG · 2024Article
- Developing and assessing a kin keeping scale with application to identifying central influencers in African American family networks.Journal of community genetics · 2023Article
- The role of family communication patterns in intergenerational COVID-19 discussions and preventive behaviors: a social cognitive approach.BMC psychology · 2023Article
30 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
objectivesGiven the importance of the dissemination of accurate family history to assess disease risk, we characterized the gatherers, disseminators, and blockers of health information within families at high genetic risk of cancer.
methodsA total of 5466 personal network members of 183 female participants of the Breast Imaging Study from 124 families with known mutations in the BRCA1/2 genes (associated with high risk of breast, ovarian, and other types of cancer) were identified by using the Colored Eco-Genetic Relationship Map (CEGRM). Hierarchical nonlinear models were fitted to characterize information gatherers, disseminators, and blockers.
resultsGatherers of information were more often female (P<.001), parents (P<.001), and emotional support providers (P<.001). Disseminators were more likely female first- and second-degree relatives (both P<.001), family members in the older or same generation as the participant (P<.001), those with a cancer history (P<.001), and providers of emotional (P<.001) or tangible support (P<.001). Blockers tended to be spouses or partners (P<.001) and male, first-degree relatives (P<.001).
conclusionsOur results provide insight into which family members may, within a family-based intervention, effectively gather family risk information, disseminate information, and encourage discussions regarding shared family risk.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.