ArticlePLoS genetics2009
Public access to genome-wide data: five views on balancing research with privacy and protection.
Article in PLoS genetics, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Ethical aspects of human biobanks: a systematic review.Croatian medical journal · 2011Pooled it
- Session Introduction: TOWARDS ETHICAL BIOMEDICAL INFORMATICS: LEARNING FROM OLELO NOEAU, HAWAIIAN PROVERBS.Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing · 2023Article
- Controlling my genome with my smartphone: first clinical experiences of the PROMISE system.Clinical research in cardiology : official journal of the German Cardiac Society · 2022Article
- Attitudes of Costa Rican individuals towards donation of personal genetic data for research.Personalized medicine · 2021Article
- Data Management of Sensitive Human Proteomics Data: Current Practices, Recommendations, and Perspectives for the Future.Molecular & cellular proteomics : MCP · 2021Article
- Cardioinformatics: the nexus of bioinformatics and precision cardiology.Briefings in bioinformatics · 2020Article
- A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England.Public understanding of science (Bristol, England) · 2020Article
- simGWAS: a fast method for simulation of large scale case-control GWAS summary statistics.Bioinformatics (Oxford, England) · 2019Article
- Re-identifiability of genomic data and the GDPR: Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation.EMBO reports · 2019Article
- Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- When Biology Gets Personal: Hidden Challenges of Privacy and Ethics in Biological Big Data.Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing · 2019Article
- Information and Communication Technologies, Genes, and Peer-Production of Knowledge to Empower Citizens' Health.Science and engineering ethics · 2018Article
- Quantification of private information leakage from phenotype-genotype data: linking attacks.Nature methods · 2016Article
- Understanding the links between privacy and public data sharing.Nature methods · 2016Article
- Article
- Next-generation sequencing-based genome diagnostics across clinical genetics centers: implementation choices and their effects.European journal of human genetics : EJHG · 2015Article
- Privacy in the Genomic Era.ACM computing surveys · 2015Article
- Multidisciplinary approach to genomics research in Africa: the AfriCRAN model.The Pan African medical journal · 2015Article
- Precision medicine in chronic disease management: The multiple sclerosis BioScreen.Annals of neurology · 2014Review
- Biobanking and translation of human genetics and genomics for infectious diseases.Applied & translational genomics · 2014Article
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Authors and funding
9 authors.
Funding
Abstract
PubMed holds no abstract for this paper.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.