ArticleRadiation oncology (London, England)2009
Patient information in radiation oncology: a cross-sectional pilot study using the EORTC QLQ-INFO26 module.
Article in Radiation oncology (London, England), 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Patients' perspective in anal cancer.ESMO gastrointestinal oncology · 2026Review
- Article
- The Patient's perspective on radiation therapy for anal cancer: Evaluation of expectations and stigma.Cancer reports (Hoboken, N.J.) · 2023Article
- The patient's perspective on radiation for rectal cancer: Initial expectations versus actual experience.Cancer medicine · 2023Article
- Radiotherapy for prostate cancer: DISCERN quality assessment of patient-oriented websites in 2018.BMC urology · 2019Article
- Do Patients Feel Well Informed in a Radiation Oncology Service?Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Article
- Side effects of radiotherapy in breast cancer patients : The Internet as an information source.Strahlentherapie und Onkologie : Organ der Deutschen Rontgengesellschaft ... [et al] · 2018Article
- Predictors of overall satisfaction of cancer patients undergoing radiation therapy.Patient preference and adherence · 2015Article
- Influences of patient sociodemographics on cancer information received through the first 9 months of treatment.Journal of cancer education : the official journal of the American Association for Cancer Education · 2014Article
- Patient information in stem cell transplantation from the perspective of health care professionals: a survey from the Nurses Group of the European Group for Blood and Marrow Transplantation.Bone marrow transplantation · 2012Article
- Patient satisfaction during radiation therapy. Correlates and patient suggestions.Strahlentherapie und Onkologie : Organ der Deutschen Rontgengesellschaft ... [et al] · 2012Article
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Authors and funding
6 authors.
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Abstract
backgroundThe availability of alternative sources of information, e. g. the internet, may influence the quantity and quality of information cancer patients receive regarding their disease and treatment. The purpose of the present study was to assess perception of information in cancer patients during radiotherapy as well as media preferences and specifically the utilization of the internet.
methodsIn a cross-sectional, single-centre study 94 patients currently undergoing radiotherapy were asked to complete two questionnaires. The EORTC QLQ-INFO26 module was used to assess the quality and quantity of information received by patients in the areas disease, medical tests, treatment, other services, different places of care and how to help themselves, as well as qualitative aspects as helpfulness of and satisfaction with this information. The importance of different media, in particular the internet, was investigated by a nine-item questionnaire.
resultsThe response rate was n = 72 patients (77%). Patients felt best informed concerning medical tests (mean +/- SD score 79 +/- 22, scale 0-100) followed by disease (68 +/- 21). Treatment (52 +/- 24) and different places of care and other services (30 +/- 36 and 30 +/- 30, respectively) ranked last. 37% of patients were very satisfied and 37% moderately satisfied with the amount of information received, 61% wished more information. Among eight media, brochures, television and internet were ranked as most important. 41% used the internet themselves or via friends or family, mostly for research of classic and alternative treatment options. Unavailability and the necessity of computer skills were most mentioned obstacles.
conclusionIn a single-center pilot study, radiotherapy patients indicated having received most information about medical tests and their disease. Patients very satisfied with their information had received the largest amount of information. Brochures, television and internet were the most important media. Individual patient needs should be considered in the development of novel information strategies.
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