ArticleBMC health services research2009
Development and validation of the accommodation and enabling scale for eating disorders (AESED) for caregivers in eating disorders.
Article in BMC health services research, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.
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Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it, 124 citations in OpenAlex.
- A systematic review of the impact of carer interventions on outcomes for patients with eating disorders.Eating and weight disorders : EWD · 2022Pooled it
- A network analysis in adolescent anorexia nervosa exploring the connection between both patient and carer reactions and outcome.European eating disorders review : the journal of the Eating Disorders Association · 2023Trial
- Supporting Carers of Children and Adolescents with Eating Disorders in Austria (SUCCEAT): Study protocol for a randomised controlled trial.European eating disorders review : the journal of the Eating Disorders Association · 2018Trial
- An open trial of Acceptance-based Separated Family Treatment (ASFT) for adolescents with anorexia nervosa.Behaviour research and therapy · 2015Trial
- Changes in Parental Well-Being Following Intensive Day Programme Treatment for Restrictive Eating Disorders in Adolescents.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- Participation in the New Maudsley Model Workshops is Associated With Reductions in Caregiver Burden in Eating Disorders.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- A descriptive study of patients' and families' experience of multifamily therapy for eating disorders in young adults.Journal of eating disorders · 2026Article
- Clinical Outcomes After Temperament Based Therapy With Support (TBT-S): A 12-Month Naturalistic Follow-Up Study.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- Effectiveness of temperament based therapy with support: a randomized controlled trial study protocol.Frontiers in psychology · 2026Article
- Emotional burden and family functioning among caregivers of individuals with eating disorders.Journal of eating disorders · 2025Article
- Learning From Those Who Have Lived: A Scoping Review Exploring the Involvement of Lived Experience Co-Design in Eating Disorder Research Methodologies.The International journal of eating disorders · 2025Article
- Psychometric evaluation of the 'Caregiver Factors Influencing Treatment' (Care-FIT) Inventory for child and adolescent eating disorders.Journal of eating disorders · 2025Article
- Italian Validation of the Accommodation and Enabling Scale for Eating Disorders and Caregiver Skills Scale for Caregivers of Patients With Eating Disorders.International journal of methods in psychiatric research · 2025Article
- Mother-Father Distress, Accommodation, and Child Eating Disorder Behaviors: A Dyadic Perspective.Family process · 2025Article
- The current clinical approach to feeding and eating disorders aimed to increase personalization of management.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2025Article
- Efficacy of the ECHOMANTRA online intervention to support recovery from anorexia nervosa in adult patients: study protocol of a randomized controlled multi-center trial.Journal of eating disorders · 2025Article
- Article
- A systematic scoping review of carer accommodation in eating disorders.Journal of eating disorders · 2024Article
- Family accommodation in PTSD: Proposed considerations and distinctions from the established transdiagnostic literature.Clinical psychology : a publication of the Division of Clinical Psychology of the American Psychological Association · 2023Article
- Caregivers in anorexia nervosa: is grief underlying parental burden?Eating and weight disorders : EWD · 2023Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamilies of people with eating disorders are often caught up in rule bound eating and safety behaviours that characterise the illness. The main aim of this study was to develop a valid and specific scale to measure family accommodation in the context of having a relative with an eating disorder.
methodsA new scale, the Accommodation and Enabling Scale for Eating Disorders (AESED), was jointly generated by professionals and expert carers through qualitative analysis. In the first stage, this instrument was given to 201 family members of relatives diagnosed with an eating disorder, with additional self-report measures including the Experience of Caregiving Inventory (ECI), the Hospital Anxiety and Depression Scale (HADS) and the Family Questionnaire (FQ). In the second stage, the sensitivity of the AESED to change was tested in a pre-and-post design study with a new sample of 116 caregivers, using a DVDs-distance skills training for caregivers.
resultsA 33 item instrument was derived consisting of five factors: Avoidance and Modifying Routine, Reassurance Seeking, Meal Ritual, Control of Family and Turning a Blind Eye, which together explained 60.1% of the variance. This scale had good psychometric properties in terms of Cronbach's alpha which ranged from 0.77 to 0.92. Regarding the convergent validity, most of the AESED subscales was moderately supported by correlations with anxiety (HADS; r = 0.24 to 0.48) and depression levels (HADS; r = 0.17 to 0.47), negative caregiving (ECI; r = 0.18 to 0.45), and expressed emotion levels (FQ; r = 0.17 to 0.51). Pre-post intervention assessments showed that the overall AESED scale (d = 0.38) and the avoidance and modifying routine (d = 0.52), meal ritual (d = 0.27) and control of the family (d = 0.49) subscales were sensitive to change.
conclusionInternal consistency was good and initial validity of the scale was adequate, it was able to discriminate differences between clinical variables, however, further work is needed to confirm the factor structure and validity of the AESED. Nevertheless, this scale may be of value in exploring and helping to improve carers' coping strategies and in examining the effectiveness of family based interventions.
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