ArticleHealth expectations : an international journal of public participation in health care and health policy2010
Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis.
Article in Health expectations : an international journal of public participation in health care and health policy, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 79 citations in OpenAlex.
- A systematic review of the impact of patient and public involvement on service users, researchers and communities.The patient · 2014Pooled it
- (En)Abling Architectural Research: Co-Designing With People With Intellectual Disabilities.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Using Non-Standard Research Methods to Explore the Perspectives of People With Intellectual Disabilities on Sensitive Topics: A Discussion of the Research Paradigm, Data Collection Methods and Data Analysis.Journal of applied research in intellectual disabilities : JARID · 2026Article
- 'Smiling and Talking Slowly': A Qualitative Study on the Ideal Ophthalmologist From the Perspective of Adults With Intellectual Disabilities.Journal of intellectual disability research : JIDR · 2025Article
- Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones.Research involvement and engagement · 2023Article
- Improving the depth of data quality or increasing confusion? Reflections on a data analysis involving members of a self-help group for relatives of people living with dementia.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Supporting Remote Survey Data Analysis by Co-researchers with Learning Disabilities through Inclusive and Creative Practices and Data Science Approaches.DIS. Designing Interactive Systems (Conference) · 2021Article
- Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Stakeholders' engagement in co-producing policy-relevant knowledge to facilitate employment for persons with developmental disabilities.Health research policy and systems · 2020Article
- Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement.Research involvement and engagement · 2019Article
- Co-producing Randomized Controlled Trials: How Do We Work Together?Frontiers in sociology · 2019Article
- Self-reported measures in health research for people with intellectual disabilities: an inclusive pilot study on suitability and reliability.BMC medical research methodology · 2018Article
- Best practice framework for Patient and Public Involvement (PPI) in collaborative data analysis of qualitative mental health research: methodology development and refinement.BMC psychiatry · 2018Review
- Broadening public participation in systematic reviews: a case example involving young people in two configurative reviews.Research synthesis methods · 2015Article
- Involving service users in qualitative analysis: approaches and assessment.Health expectations : an international journal of public participation in health care and health policy · 2010Article
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
backgroundPeople with learning disabilities have been included in research as co-researchers since the 1990s. However, there is limited literature about the processes of involving people with learning disabilities in the more intellectual and analytical stages of the research process.
aimsTo examine the potential contribution of people with learning disabilities to data analysis in qualitative research.
methodsThis article is a reflection on one research experience. The two authors include one researcher with and one without learning disabilities. They each describe their experience and understanding of user involvement in analysing the data of an ethnographic study of people with learning disabilities who had cancer. The researcher with learning disabilities was given extensive vignettes and extracts from the research field notes, and was supported to extract themes, which were cross-compared with the analysis of other members of the research team.
resultsThe researcher with learning disabilities coped well with the emotive content of the data and with the additional support provided, he was able to extract themes that added validity to the overall analysis. His contribution complemented those of the other members of the research team. There were unexpected benefits, in particular, in terms of a more reciprocal and supportive relationship between the two researchers.
conclusionIt is possible and valuable to extend involvement to data analysis, but to avoid tokenism and maintain academic rigour, there must be a clear rationale for such involvement. Extra support, time and costs must be planned for.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.