ArticleJournal of genetic counseling2004
Exploring the public understanding of basic genetic concepts.
Article in Journal of genetic counseling, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 106 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
106 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials.Journal of healthcare engineering · 2018Pooled it
- To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.European journal of human genetics : EJHG · 2013Pooled it
- Shared decision-making following disclosure of coronary heart disease genetic risk: results from a randomized clinical trial.Journal of investigative medicine : the official publication of the American Federation for Clinical Research · 2017Trial
- Guiding Oncology Patients Through the Maze of Precision Medicine.Journal of health communication · 2016Trial
- Information-seeking and sharing behavior following genomic testing for diabetes risk.Journal of genetic counseling · 2015Trial
- Public knowledge of and attitudes toward genetics and genetic testing.Genetic testing and molecular biomarkers · 2013Trial
- Testing the effects of educational strategies on comprehension of a genomic concept using virtual reality technology.Patient education and counseling · 2009Trial
- Addressing Disparities in Alzheimer's Disease-Related Healthcare Through Understanding Factors Contributing to Perceived Vulnerability Among Latinos in Northern Manhattan: A Qualitative Report.Journal of racial and ethnic health disparities · 2026Article
- What kind of information is requested by patients and families with genetic disorders? : The analysis of an online patient community in South Korea.Journal of community genetics · 2025Article
- Deciphering the needs of patients with hereditary breast and ovarian Cancer in the Process of Genetic Counseling to Inform the Development of a Mobile Support App: a qualitative study in Germany.Journal of community genetics · 2024Article
- Knowledge of genetics and attitudes toward genetic testing among university students in Indonesia.Journal of community genetics · 2024Article
- The role of Patient and public involvement (PPI) in pre-clinical spinal cord research: An interview study.PloS one · 2024Article
- Variability in conceptualizations and measurement of genetic literacy.PEC innovation · 2023Article
- Impact of genomic literacy components on genetic testing decision-making in the general Japanese population in the 20s and 30s.PloS one · 2023Article
- "La Piedra Rosetta" Content Analysis of Health-Specific Stories on Genetic Testing From Spanish-Language News Outlets.The Howard journal of communications · 2023Article
- Genetic essentialist beliefs about criminality predict harshness of recommended punishment.Journal of experimental psychology. General · 2022Article
- Lay understandings of drug-gene interactions: The right medication, the right dose, at the right time, but what are the right words?Clinical and translational science · 2022Article
- Study of an Educational Telenovela to Teach Genomics among Latino Farmworkers and Nonfarmworkers: Lessons Learned.Progress in community health partnerships : research, education, and action · 2022Article
- Knowledge and attitudes regarding genetic testing among Jordanians: An approach towards genomic medicine.Saudi journal of biological sciences · 2021Article
- Engagement and return of results preferences among a primarily African American genomic sequencing research cohort.American journal of human genetics · 2021Article
46 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
It is predicted that the rapid acquisition of new genetic knowledge and related applications during the next decade will have significant implications for virtually all members of society. Currently, most people get exposed to information about genes and genetics only through stories publicized in the media. We sought to understand how individuals in the general population used and understood the concepts of "genetics" and "genes." During in-depth one-on-one telephone interviews with adults in the United States, we asked questions exploring their basic understanding of these terms, as well as their belief as to the location of genes in the human body. A wide range of responses was received. Despite conversational familiarity with genetic terminology, many noted frustration or were hesitant when trying to answer these questions. In addition, some responses reflected a lack of understanding about basic genetic science that may have significant implications for broader public education measures in genetic literacy, genetic counseling, public health practices, and even routine health care.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.