SynthesisEpilepsia2009
Disparities in epilepsy: report of a systematic review by the North American Commission of the International League Against Epilepsy.
Synthesis in Epilepsia, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06265103 (Epilepsy Learning Healthcare System), which is not on this map. Cited by 72 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Epilepsy Learning Healthcare System (ELHS) for Quality Care & Outcome Improvement
Who cites it
72 citing papers in PubMed, 1 synthesis or guideline pooled it, 167 citations in OpenAlex.
- Correlates of quality of life among individuals with epilepsy enrolled in self-management research: From the US Centers for Disease Control and Prevention Managing Epilepsy Well Network.Epilepsy & behavior : E&B · 2017Pooled it
- Ethnicity and health outcomes among people with epilepsy participating in an epilepsy self-management RCT.Epilepsy & behavior : E&B · 2019Trial
- Epilepsy as a predictor of subjective memory and executive dysfunction in American children and adults, with sleep as a relevant factor.Epilepsy & behavior : E&B · 2026Article
- Article
- Delayed and deferred surgery associated with cenobamate use in people with drug-resistant focal epilepsy.Epilepsia · 2026Article
- Geographic Disparities in People with Epilepsy: Differences in Self-Efficacy and Quality of Life.Journal of epilepsy research · 2026Article
- Is It Policy And Not Treatment That Actually Determines Epilepsy Outcomes?Epilepsy currents · 2026Article
- "I'm lonely": An underrecognized marker of silent suffering in PWE in underresourced settings?Epilepsy & behavior reports · 2026Article
- The role of social context in cognitive and neurobehavioural outcomes in epilepsy.Nature reviews. Neurology · 2026Review
- Prevalence of Epilepsy across 25 Sub-Counties in Three Districts of Northern Uganda.Neuroepidemiology · 2026Article
- Diagnostic Challenges in the Neuropsychology of Epilepsy: Report of the ILAE Neuropsychology Task Force Diagnostic Methods Commission: 2021-2025.Epileptic disorders : international epilepsy journal with videotape · 2025Article
- Main complications of epilepsy surgery performed in a single center in Latin America.Neurosurgical review · 2025Article
- Disparities in the utilization of genetic testing for non-acquired infantile epileptic spasms syndrome in a single healthcare center in North Carolina.Epilepsia open · 2025Article
- A user's guide for the International Classification of Cognitive Disorders in Epilepsy.Epileptic disorders : international epilepsy journal with videotape · 2024Review
- The impact of COVID-19 on people with epilepsy: Global results from the coronavirus and epilepsy study.Epilepsia open · 2024Article
- Mortality and mortality disparities among people with epilepsy in the United States, 2011-2021.Epilepsy & behavior : E&B · 2024Article
- Disparities in Access to Deep Brain Stimulation and Responsive Neurostimulation Approaches to Drug-Resistant Epilepsy.Neuromodulation : journal of the International Neuromodulation Society · 2024Article
- Disparities in seizure outcomes revealed by large language models.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Disparities in Teleneurology Use in Medicaid Beneficiaries With Epilepsy by Practice Setting: Promoting Health Equity in Academic Centers.Neurology · 2024Article
- Underrepresented and Underserved Populations in Neurological Research.Seminars in neurology · 2024Article
12 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
Abstract
purposeWe undertook a systematic review of the evidence on disparities in epilepsy with a focus on North American data (Canada, United States, and the English-speaking Caribbean).
methodsWe identified and evaluated: access to and outcomes following medical and surgical treatment, disability, incidence and prevalence, and knowledge and attitudes. An exhaustive search (1965-2007) was done, including: (1) disparities by socioeconomic status (SES), race/ethnicity, age, or education of subgroups of the epilepsy population; or (2) disparities between people with epilepsy (PWE) and healthy people or with other chronic illnesses.
resultsFrom 1,455 citations, 278 eligible abstracts were identified and 44 articles were reviewed. Comparative research data were scarce in all areas. PWE have been shown to have lower education and employment status; among PWE, differences in access to surgery have been shown by racial/ethnic groups. Aboriginals, women, and children have been shown to differ in use of health resources. Poor compliance has been shown to be associated with lower SES, insufficient insurance, poor relationship with treating clinicians, and not having regular responsibilities. DISCUSSION: Comprehensive, comparative research on all aspects of disparities in epilepsy is needed to understand the causes of disparities and the development of any policies aimed at addressing health disparities and minimizing their impact.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.