ArticleHealth expectations : an international journal of public participation in health care and health policy2010
Patient participation in collective healthcare decision making: the Dutch model.
Article in Health expectations : an international journal of public participation in health care and health policy, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 62 papers, 1 of them a synthesis that pooled it.
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Who cites it
62 citing papers in PubMed, 1 synthesis or guideline pooled it, 171 citations in OpenAlex.
- What methods are used to promote patient and family involvement in healthcare regulation? A multiple case study across four countries.BMC health services research · 2020Pooled it
- Trial
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- [Representation and representativeness in health councils: between formalization and participatory legitimacy].Cadernos de saude publica · 2025Article
- Involving Service Users in Care Regulation: A Scoping Review of Empirical Literature.International journal of health policy and management · 2025Article
- Between willingness and practice: a nationwide survey of 1,334 German patient organization members on user involvement in digital service development.Frontiers in digital health · 2025Article
- Ethical challenges in contemporary psychiatry: an overview and an appraisal of possible strategies and research needs.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2024Article
- Evaluating patient participation in value-based healthcare: Current state and lessons learned.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Barriers and Facilitators to Health-Care Provider Payment Reform - A Scoping Literature Review.Risk management and healthcare policy · 2023Article
- Patient involvement in basic rheumatology research at Nijmegen: a three year's responsive evaluation of added value, pitfalls and conditions for success.BMC rheumatology · 2022Article
- Gaining 'clarity through specificity' in invited patient participation: A case study of a multifaceted participatory practice in the Netherlands.Health & social care in the community · 2022Article
- Including the voice of paediatric patients: Cocreation of an engagement game.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Representation in participatory health care decision-making: Reflections on an Application-Oriented Model.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Integrated Payment, Fragmented Realities? A Discourse Analysis of Integrated Payment in the Netherlands.International journal of environmental research and public health · 2022Article
- How do health services engage culturally and linguistically diverse consumers? An analysis of consumer engagement frameworks in Australia.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Patient involvement at the managerial level: the effectiveness of a patient and family advisory council at a regional cancer centre in Sweden.BMC health services research · 2021Article
- Stakeholder Coalitions and Priorities Around the Policy Goals of a Nation-Wide Mental Health Care Reform.Administration and policy in mental health · 2021Article
- Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process.Sociology of health & illness · 2021Article
- Health Literacy Interventions to Improve Health Outcomes in Low- and Middle-Income Countries.Health literacy research and practice · 2020Article
2 more citing papers are in PubMed but not listed here.
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo study whether the Dutch participation model is a good model of participation.
backgroundPatient participation is on the agenda, both on the individual and the collective level. In this study, we focus on the latter by looking at the Dutch model in which patient organizations are involved in many formal decision-making processes. This model can be described as neo-corporatist.
designWe did 52 interviews with actors in the healthcare field, 35 of which were interviews with representatives of patient organizations and 17 with actors that involved patient organizations in their decision making.
resultsDutch patient organizations have many opportunities to participate in formal healthcare decision making and, as a result, have become institutionalized. Although there were several examples identified in which patient organizations were able to influence decision making, patient organizations remain in a dependent position, which they try to overcome through professionalization. DISCUSSION: Although this model of participation gives patient organizations many opportunities to participate, it also causes important tensions. Many organizations cannot cope with all the participation possibilities attributed to them. This participation abundance can therefore cause redistribution effects. Furthermore, their dependent position leads to the danger of being put to instrumental use. Moreover, professionalization causes tensions concerning empowerment possibilities and representativeness. Conclusion Although the Dutch model tries to make patient organizations an equal party in healthcare decision making, this goal is not reached in practice. It is therefore important to study more closely which subjects patients can and should contribute to, and in what way.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.