SynthesisSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2010
What do palliative care patients and their relatives think about research in palliative care?-a systematic review.
Synthesis in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04894162 (Participating in Palliative Care Research), which is not on this map. Cited by 37 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Participating in Palliative Care Research
Who cites it
37 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The willingness to participate in biomedical research involving human beings in low- and middle-income countries: a systematic review.Tropical medicine & international health : TM & IH · 2019Pooled it
- Bicentre, randomized, parallel-arm, sham-controlled trial of transcranial direct-current stimulation (tDCS) in the treatment of palliative care patients with refractory cancer pain.BMC palliative care · 2023Trial
- Conducting a randomized controlled clinical trial on palliative care in patients with glioblastoma - what are the challenges?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Perspectives, attitudes and experiences of introducing noninvasive medical technologies in end-of-life care: a scoping review.BMC palliative care · 2025Article
- Exploring the Impact of a Remote Monitoring System for Palliative and End-of-Life Care (CARE-PAC): Mixed Methods Feasibility Study.JMIR formative research · 2025Article
- Conducting Research in Palliative Care as Viewed by Interprofessional Care Teams: Insights from a Cross-Sectional Survey.Palliative medicine reports · 2025Article
- Implementation of a digital distress detection system in palliative care: qualitative data on perspectives of a multiprofessional palliative care team.BMC palliative care · 2024Article
- Happiness in Hospice Care in The Netherlands: A Case Study Design.Journal of religion and health · 2024Article
- Indian Society of Critical Care Medicine and Indian Association of Palliative Care Expert Consensus and Position Statements for End-of-life and Palliative Care in the Intensive Care Unit.Indian journal of critical care medicine : peer-reviewed, official publication of Indian Society of Critical Care Medicine · 2024Article
- Appropriate medication use in Dutch terminal care: study protocol of a multicentre stepped-wedge cluster randomized controlled trial (the AMUSE study).BMC palliative care · 2024Article
- Magnesium hydroxide versus macrogol/electrolytes in the prevention of opioid-induced constipation in incurable cancer patients: study protocol for an open-label, randomized controlled trial (the OMAMA study).BMC palliative care · 2023Article
- Doing palliative care research on hematologic cancer patients: A realist synthesis of literature and experts' opinion on what works, for whom and in what circumstances.Frontiers in oncology · 2023Article
- Benefits of Study Participation for Patients with Advanced Cancer Receiving Radiotherapy: A Prospective Observational Study.Palliative medicine reports · 2022Article
- Successful Strategies and Areas of Improvement-Lessons Learned from Design and Conduction of a Randomized Placebo-Controlled Trial in Palliative Care, 'Palliative-D'.Life (Basel, Switzerland) · 2021Article
- Barriers and facilitators to the participation of subjects in clinical trials: An overview of reviews.Contemporary clinical trials communications · 2021Article
- Views of healthcare professionals on recruiting to a psychosocial randomised controlled trial: a qualitative study.BMC health services research · 2021Article
- Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Protocol for a Qualitative Study.JMIR research protocols · 2021Article
- Views of patients with advanced disease and their relatives on participation in palliative care research.BMC palliative care · 2021Article
- The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Caregiver-guided pain coping skills training for patients with advanced cancer: Background, design, and challenges for the CaringPals study.Clinical trials (London, England) · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionResearch in palliative care patients has been controversial and is often challenging. It is important to know the views of potentially eligible patients themselves in order to determine the appropriateness of research in the palliative care population and to develop realistic studies that are practical and achievable in this population. This systematic review aims to identify the views of palliative care patients and their families towards research, the factors that are important when considering participation, and the types of research trial they would support or reject.
methodsA systematic literature review was undertaken to identify what is known to date regarding the views of palliative care patients and their relatives towards research participation. Eight relevant studies were identified. DISCUSSION: There is an increasing body of evidence considering the views of palliative care patients towards research in palliative care. However, only three studies have considered the views of their relatives/caregivers. Several common themes emerged from the literature including the potential for personal gain, altruism, the wish to avoid complex studies and a desire to retain autonomy. Trial-related factors were also important determinants of willingness of patients and relatives to participate in research. The views expressed by palliative care patients towards research are similar to those of other patient populations.
conclusionResearch to date in the palliative care setting has suggested that patients are interested in participating in research and may actually benefit from doing so.
Indexed as
Identifiers
19705165What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.