ArticleJournal of medical Internet research2009
Patients' attitudes toward electronic health information exchange: qualitative study.
Article in Journal of medical Internet research, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 1 of them a synthesis that pooled it.
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Who cites it
60 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring the willingness to share personal health information: a systematic review.Frontiers in public health · 2023Pooled it
- Fitness Tracker Information and Privacy Management: Empirical Study.Journal of medical Internet research · 2021Trial
- Improving Self-Care in Patients With Coexisting Type 2 Diabetes and Hypertension by Technological Surrogate Nursing: Randomized Controlled Trial.Journal of medical Internet research · 2020Trial
- Privacy Concerns and Configurational Patterns of Health Information Sharing Intention Among Patients with Chronic Diseases in Online Health Communities: An SEM and fsQCA Analysis.Healthcare (Basel, Switzerland) · 2026Article
- Public perceptions of health data sharing for artificial intelligence research: a qualitative focus group study in the UK.BMJ digital health & AI · 2026Article
- Enhancing Large Language Models With AI Agents for Chronic Gastritis Management: Comprehensive Comparative Study.JMIR medical informatics · 2025Article
- A study on user willingness to participate in an adverse drug event information sharing system.BMC public health · 2024Article
- Community perspectives on the use of electronic health data to support reflective practice by health professionals.BMC medical informatics and decision making · 2024Article
- Article
- Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information.Journal of medical Internet research · 2023Article
- The Patient Role in a Federal National-Scale Health Information Exchange.Journal of medical Internet research · 2022Article
- Needs of Lung Cancer Patients Receiving Immunotherapy and Acceptance of Digital and Sensor-Based Scenarios for Monitoring Symptoms at Home-A Qualitative-Explorative Study.International journal of environmental research and public health · 2022Article
- Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World.Journal of medical Internet research · 2022Article
- Sharing intention of electronic health records in online health communities: Patients' behavioral decisions in the context of privacy protection measures.Frontiers in psychology · 2022Article
- Routinely collected data and patient-centred research in anaesthesia and peri-operative care: a narrative review.Anaesthesia · 2021Review
- Barriers to the Digitization of Health Information: A Qualitative and Quantitative Study in Kenya and Lao PDR Using a Cloud-Based Maternal and Child Registration System.International journal of environmental research and public health · 2021Article
- Assessing the quality of mobile applications in chronic disease management: a scoping review.NPJ digital medicine · 2021Article
- Leadership Perspectives on Implementing Health Information Exchange: Qualitative Study in a Tertiary Veterans Affairs Medical Center.JMIR medical informatics · 2021Article
- Privacy Concerns About Health Information Disclosure in Mobile Health: Questionnaire Study Investigating the Moderation Effect of Social Support.JMIR mHealth and uHealth · 2021Article
- Non-Hispanic White Mothers' Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel.Journal of participatory medicine · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIn many countries, there has been substantial progress in establishing the electronic transmission of patients' health information between health care providers, but little is known about how best to engage patients in the process.
objectiveWe explored patients' views about sharing of electronic health information and their preferences for learning about and participating in this process.
methodsPatients in one Massachusetts community in the northeastern United States were recruited to participate in focus-group discussions. Prior to discussion, participants completed a written questionnaire that captured their reactions to draft educational materials and a consent form. The discussion moderator and two physicians analyzed the moderator's detailed notes from each session and participants' written comments, using an immersion-crystallization approach.
resultsThree dominant themes emerged: (1) concerns about privacy and security, (2) the potential benefit to a person's health, and (3) the desire for more information about the consent process. On the pre-discussion questionnaire, 55 out of 62 participants (88%) indicated that they would provide consent for their information to be shared electronically among their health care providers, given the materials they had reviewed.
conclusionsPatients are enthusiastic about electronic health information exchange, recognizing its capacity to improve the quality and safety of health care; however, they are also concerned about its potential to result in breached privacy and misuse of health data. As the exchange of electronic health information becomes more widespread, policy makers will need to ensure that patients have access to concise educational materials and opportunities to engage in conversations about the risks and benefits of participation.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.